Tagged cancer

I Walk (Hop/Skip) The (Dashed/Dotted) Line

WalkTheLine1956

So I’ve never done this before, but sometimes I get a note from somebody who’s reading SHAKEN NOT STIRRED…A CHEMO COCKTAIL, and today I got one that just started my day off with the biggest and best kinda bang like kaPOW! and I thought I’d share…

“I’m reading the page in your book with the Boob Lube and had to stop to tell you how hella-fabulous it is. I mean, seriously…a dashed line for me to dog ear the page? You, my friend, are a literary genius. Yep. Right up there with ole Bill S. himself.” ~Kim.

First of all, thank you, Kim. For this kind note, your kind words…but also, let me not neglect to say, for your service. _/_ YOU. so. very. much. made. my. day. today. Before my day had even started! Your note was the first thing I read this morning. Before I’d even had a sip of my coffee. But boy did it make my coffee taste like the best. cup. ever!

I remember cracking myself up about that dashed line. I had to ask my youngest son, Mikeyy, to help me put it in the book since I am so. very. NOT. tech savvy. Also I’m basically not good with straight lines (even dashed ones) (even when I haven’t been “cheers”ing;).

Anyway, most of the notes I get about SHAKEN are from peeps downing their own damn chemo cocktails…and they all humble me down to the ground, which I figure is a pretty damn good praying position, so that’s how I usually roll with it. It means more than words, to be able to walk with someone through their own journey, as they walk through mine, via SHAKEN.

And this note I received this morning…from a badass military veteran/breast cancer warrior sister/friend of mine reading my book and sharing my joy over that dashed line…walking the line with me, if you will…also makes me hit the dirt, heavily laden with gratitude. So I thought I’d lighten the load a little and share;)

And while I’m in this uber fab/fun sharing mood, I thought, why not also share this link about Boob Lube, which I remember making me LMFAO a little when I found out about it when I was writing SHAKEN. I thought/think it was SUCH a superpower freaking clever product to encourage breast health awareness. Still do.

And while we’re on the topic of breast health awareness…this would be a mighty fine time to go check yourself. In fact, I’ll end this post now so you can go do that.

Paper Peonies and Dandelions

Dear V,

One. Year. Ago…

V's Wave

It’s true time flies.
(I threw a clock out the window once
and proved it.)
But Salvador Dali had the right idea
With those weeping clocks…
On days like today
I don’t believe time heals.
And why should it?
Why
Would I ever want to
“Get over”
YOU
?

You left a beauty mark on my soul.
Your mantra is etched in me
The ink is dry
Except for teardrops…
Which keeps dotting the i’s
In Live Sincerely.

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I miss you.

Meanwhile here I am
Spending time
This day
In the Big Apple.
Isn’t it ironic?
Maybe a little too ironic
—or maybe it’s poetry?
Because this is where we met
On that serendipitous day in October
when I saw you standing
(beside yourself)
aka
Next to
Your breathtaking SCAR Portrait
Hanging in Soho
At the very first SCAR Project Exhibit
In 2010.

V exhibit

S.C.A.R.
[Surviving Cancer.] [Absolute Reality.]
You and me both.
And both of us from Cincinnati.
Get.
Out.
Of.
Town.
Funny how
That’s how we met.

That time when time
Put the pedal to the metal
While we were working our asses off
on The S.C.A.R. Cincy Exhibit—
When the absolute fucking reality of surviving cancer
Was thrown in our faces
In the form of a headache you had
that wouldn’t clock out…
2 weeks before opening night.

How?

For YOU
because you said “the show must go on.”
Especially now.
There was no try
Just do
We did it for you.

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It was one of the hardest things I’ve ever done in my life
But not as hard as saying goodbye
365 days ago
when
you
punched
out
…and flew away with time…

I miss you.

This V-shaped hole is most def the hardest thing.
‪#‎fuckcancer‬
I hear the echo of your voice
That I can’t remember anymore,
“The show must go on.”
And I still sometimes wonder how?

I was wondering that the other day while I was driving here.
I saw a flock of birds
in a V-formation:
a Peace sign in the Sky.

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Every time I see one I think of you.
And every day
For me (and for V) I am…

Living sincerely,
Joules
xx

Drunkard’s Prayer

I know it’s throw back Thursday, not throw UP Thursday, but I just got a phone call from my oncologist’s office, letting me know that it’s time for my quarterly check-up…and I almost tossed my cookies (or in this case, nachos). Happens every time. That first chemo cocktail I downed six years ago yesterday, waking up with my first chemo hangover six years ago TODAY… has. left. it’s. mark. on. me. Besides the port scar. Which I had a big c (namaste _/_ Laura Linney) tattooed on—copyright that cancer.

Photo Cred goes to my friend Isis Charise, photographer of The Grace Project

Anyway, so this past weekend I went to a Jen Pastiloff Manifestation retreat in Ojai, California. It was a gift from the hubcap aka Mr. Joules, for my 6 year cancerversary, which I just celebrated August 20th. Now, this is a thing that drives my Redheads bOnKeRs (because they keep their “letters to Santa” constantly updated on Google docs) but I don’t have a list. Mostly because I already feel so lucky that I can’t even imagine what else in the world I could possibly ask for. But I asked for this because I felt I could use a little inspiration boost(er) before my 6-year check up this coming Monday.

One of the exercises she had us do at the retreat is the inspiration for today’s #tbt pic/post. This is where I feel like it’s only fair to give you a #CheeseAlert—so you might want to go pour a glass of wine to go with the cheese I’m about to throw down not up for throw back Thursday.

The exercise I’m referring to, was a writing prompt. The writing prompt flowed from a series of yoga poses. Somewhere in the ebb and flow of the yoga poses and the writing prompts, a beautiful breakdown occurs in places that were a little stuck. All the “I would/could/should/did/didn’t/have to/can’t excuses we all make. Something in the way she makes us do all those hi-YAH! kicks, makes us feel like we’re knocking down walls. (And we did.) Also, all those planks rendered our arms incapable of being raised, even an inch, to point out even one of those lame ass excuses that we all make for not manifesting aka “making shit happen” (the good kind) in our lives. I don’t know about you, but I have a boatload of excuses in my head. So many voices in my head. And way too freaking often, I hear them calling, “All aboard!” Next thing I know, I’m sailing away on a yacht called Hotel California where “you can check out anytime but you can never leave”.

Which is why it’s always a good idea to keep the voices in our head in check. Or, check-mate, as it so happened, for me during this particular exercise.  The writing prompt was to write a letter to ourself in the voice of someone who loves us.

“If you knew who walked beside you at all times, on the path that you have chosen, you could never experience fear or doubt again.”~Wayne Dyer

This is one of Jen’s themes. It’s also one of the magical things that happens at her workshops and retreats, when you look around the room at the beautiful souls who walked beside you through the weekend, and beyond.

I wrote my letter, to myself, in the voice of my husband. And here’s where the cheese enters. But not, as you might suppose, just because I’m the one stringing together said cheese. The truth of the matter is: Dave is just as cheesy as me. I was only channeling him, or I guess you could say, being the grater. Here’s a little slice (and no, I didn’t cut it) of the cheese:

Dear Joules, my jewel, wife of my youth and, I hope—NO. I know. Yes, darling, I know you have trouble seeing that far ahead, into the future, but I know. I know like I know Jesus loves me, and you, that we will be old together one day, like the couple in UP—but we won’t wait to chase our dreams. We are not waiting. The chase is on! And what. a. ride… Go ahead and put your hands up in the air. It doesn’t matter if you didn’t shave. I’m over here right next to you. I got you. Like I vowed when we were 22. And I believe you’ll still love me when I’m 64. And beyond. Even if you can’t see that far. I can see. This I know. I know enough for the both of us.

I forgot to sign it but I think I nailed it, and I have proof. I’ve been celebrating my 6 year cancerversary with this six part series of a half a dozen chapters from my book, SHAKEN NOT STIRRED…A CHEMO COCKTAIL, and there just so happens to be a chapter that Dave wrote for me. Kinda like a letter in the voice of someone who loves me…

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#tbt to the day after Christmas 2008 aka our 21st anniversary

 

Chapter 13
Drunkard’s Prayer

[Cue my fave band Over the Rhine. Click HERE to hear the song that is the soundtrack to this chapter.]

And by drunkard, I mean to give the microphone here to Dave (while I take a little break to pour another glass of wine) because he’s the one who got stuck with a handful of “in sickness” and “for worse” chips. If I were to write a six-word memoir, it would be Sorry I Cashed “In Sickness” Chips. And the sequel would be, I Hope It’s “For Better” Now. Anyway, without further ado . . . Dave.

Joules (or as I call her, Joule, for short, which I prefer to spell Jewel, if you don’t mind) is a sucker for Shakespeare. I am a sucker for my Jewel. A + B = C. It’s simple math, really. I believe even she could figure that one out and with one hand tied behind her back. Even if it’s the one with that little finger she’s got me wrapped around.

All that to say, I like Shakespeare too. Once I stood up on a bench in the middle of Borders and recited Sonnet 116 to her—it’s one of our favorites of his sonnets. And it goes, something like this… ahem: 

Sonnet 116

By Will

Let me not to the marriage of true minds

Admit impediments. Love is not love

Which alters when it alteration finds,

Or bends with the remover to remove:

O, no! it is an ever-fixed mark

That looks on tempests and is never shaken;

It is the star to every wandering bark,

Whose worth’s unknown, although his height be taken.

Love’s not Time’s fool, though rosy lips and cheeks

Within his bending sickle’s compass come;

Love alters not with his brief hours and weeks,

But bears it out even to the edge of doom.

If this be error and upon me proved,

I never writ, nor no man ever loved.

Shakespeare wrote, “Love is not love which alters when it alteration finds.” Surely he had not considered “the remover” to be a breast surgeon, nor “Time’s sickle” to be a scalpel, nor the compass of Time’s sickle to encompass his love’s breasts.

We’re not talking wrinkles, gray hair, and a little extra weight here. This is serious alteration. But when it came down to them or her, clearly they had to go.

I admit, initially I told myself that this will be a good thing. There will be reconstruction. My wife will be perky in her old age. But looking into the details, it quickly became obvious that this was not an option either of us wanted. But I have found, in true love, that there is a breastliness that transcends the physical and is more tangible than the flesh.

The only real difference this alteration has brought is that when we embrace, our hearts are that much closer together.

“Love is not love which alters when it alteration finds.” As I gaze on her even now, I hear my heart say, “Well then, Will, this must be love.”

August Rush

#LiveEveryDamnDayLikeItsSharkWeek

It’s most likely a superpower; though, I know some might dismiss it as a mere a side-effect. Whatever. Semantics. All I know is that ever since I got cancer it’s like I have some kinda Spidey-like-sense, or something, to where I actually feel August coming. And once I stick my toe in it, things just amp up. And multiply, the further out I swim. You could call it an August rush, I suppose. The best way to describe what it feels like, is the theme song to Jaws: Na-na. Na-na. Na-na-na-na-na-na-na-na-na-na. Na-na… Which, on one hand, is oh so apropos, because of ShArKwEeK; and in the other hand is my poetic license because of my own private #pinknado—aka my cancerversary.

Sunday night we celebrated both at the Evanshire. We tuned the “boob tube” to Shark Week…we ate swedish fish, goldfish crackers and other light-“bites”, drank “cancer is a Bitch wine” and “not-a-chemo-cocktails”, and were merry… we caught a sneak preview of the soon to be released “Cancer is a Bitch” music video (by my Redheads’s band, the Kicked-in Fence)… we impaled a shark piñata with a sword aka Excalibur, that my son grabbed from the umbrella stand… we read the #LiveSincerely pledge… and then we launched helium balloons with bucket list items on them into the night sky. It. Was. Magic. One of those nights to remember… to live every damn day like it’s shark week.

The very next damn day, the funniest man alive killed himself. The genie is free. But we’re all left standing on top of our desks, crying, “O captain my captain.” :( O for a na-na na-na… instead of one. final. nanu nanu. RIP, Robin. I hope you fly. And if you see a bunch of balloons up there, I hope it makes you happy to see what dreams may come, from a pretty damn good seat for the show. I was so super freaking tempted to plant myself on the couch tonight and do a Robin Williams marathon…

But six years ago tonight, in these same wee hours that I sit here plucking away at this piece, I found a damn spot in my left breast that turned out to be cancer. And yet, here am I, six years later—alive. It’s a lot to wrap the old bean around. Especially when I’ve lost so. many. too. many. people I love to this bitch of a disease. Yes, I feel like I get a little more lost, every time somebody I love finishes their battle with cancer. And yet, here. I am. Still. Alive, and kicking (cancer’s ass), healthy, fit, happy, lucky. It doesn’t seem fair, if I’m being honest. And why wouldn’t I speak that truth? #mytruth: This is something that tears me up inside every damn day that one of my friends gets diagnosed, or has a recurrence. It’s something I spend myself into the ground over, trying (as if?) I could make it worth it that I keep getting this precious gift that so many, too many of my friends, don’t. It’s something that makes me feel the way time flies uber acutely, like there’s not a second to waste if I want to leave some kind of a beauty mark that I was here. It’s something I talk to my shrink about.

So I’m a writer. This is who I am. It’s what I do. So of course I wrote a book about my cancer journey. It’s called SHAKEN NOT STIRRED…A CHEMO COCKTAIL. It’s a comedy about my tragedy. It’s not that I think cancer is funny or anything. Cancer sucks. But I believe laughter is good medicine. So did Patch Adams. If my book were a “literal” chemo cocktail, it would be one part hope, a dash of bitter, a splash of sweet, with a twist of humor, and served on the rocks. And, of course, shaken, not stirred.

To celebrate my SIX YEAR CaNcErVeRsArY, this August month, I thought I’d serve up half a dozen chapters in this space, in real time, as we keep turning pages on my #pinknado of a calendar. It seemed like the least I could do, to offer up some of the gratitude splashing out of my very full cup. I don’t want to waste a drop.

Here’s what I wrote about this night, six years ago, when I found the damn spot…

Chapter 2


When the Stars Go Blue
(Cue: Tim McGraw)

On August 11, 2008 there were meteor showers over Cincinnati. My world was rocked that night, but it had nothing to do with the meteors that my teenage son Mikeyy and I watched in the wee hours of that sleepless in Cincinnati kind of night.

Previous to Perseus’ fireworks display, somewhere in between the lines of August 11 and 12, I’d awakened particularly parched from the end-of-season cocktail party I’d thrown that evening at the Evanshire, aka my home sweet home.

Being somewhat of a newbie tennis freak, I’d played on three tennis teams that summer. My neighborhood team had just won the division championship. My United States Tennis Association (USTA) team had just played in the district championship tournament. We actually won the districts, but.

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And the big but (yeah, they say everybody’s got one) was that the win pushed one of our player’s ratings into a higher bracket, which.

And the “rhymes-with-a-witch” was that “the win?” officially disqualified all her matches and our team from the victory, not to mention a road trip to regionals. The trophy didn’t have a chance to slip through our fingers; we never even got to touch it before the ruling came raining down on our parade.

For the cocktail party, I’d grabbed several bottles of a certain Grenache that had caught my eye from across the wine store where I was searching for just the right red and/or white to go with our blues. It had a hot pink label with elegant cursive lettering that read Bitch.

Cancer is a bitch wine

My tennis girlfriends cracked up when I presented the wine. Then we all sighed, and said, “Yeah, it sure was.” We uncorked the wine. It was the best of times and we were making the best of the worst of times. We ate and drank and made merry. I went to bed thirsty.

I knew I would wake up in the middle of the night dying-of-thirst thirsty.

What I didn’t know was that dying of thirst would end up saving my life.

It was five o’clock somewhere—for me it was somewhere in the middle of the night when I woke up from a dream in which I was practically dying of thirst and trying desperately, though unsuccessfully, to quench it.

“Need . . . H . . . 2 . . . Ohhhh,” I sputtered out in a dry whisper like I was some kind of a tumbleweed, searching for an oasis.

“So. [click] Very. [click] Thirsty.”

I couldn’t even peel my tongue off the roof of my mouth.

I’d dealt with similar middle-of-the-night dehydration before, so I had the drill down, practically in my sleep. I tumbled out of bed, crawled across the bedroom floor, slithered down the stairs more like a Slinky than a snake, and somehow found myself standing in front of the kitchen sink. I guzzled a glass of water, diluting the dehydration and dousing the dream.

Then I poured another, and headed to the study to sip on the second one while checking Facebook. And I played a little Scramble, to try and unscramble the fog in my brain.

That’s when I bumped up against my desk—Ouch. I felt—and heard—an unexpected thud.

Something had gone bump in the night— and the bump was on me: my left breast, to be more specific.

My jaw fell to the floor and my eyebrows formed a question mark as I held my breath, brought my hand to my breast, and felt the lump.

I cannot explain the shock and awe I felt. It was like a meteor to my chest, literally. I remember the lump felt like a shooter marble right beneath the “milky way.” I was pretty sure it wasn’t there the day before. My hubby, Dave didn’t mention anything about marbles later that night. I’m sorry if that’s TMI, but I don’t see how we could’ve missed a meteor like that.

I don’t know how long I sat there trying to imagine what in the world the marble could be. I found myself checking and rechecking to see if it was really there. Then I kept checking and rechecking to see if it was still there. Part of me thought I was imagining things. But, no, it was still there. Part of me started imagining things. I felt the meteor again, and then stared out the window.

My fourteen-year-old son Mikeyy was lying out on the driveway, gazing up at the meteor showers in the sky. I let go of my own gravity and let myself get pulled into his world for a little while— snuggling up next to him and watching the sky fall, like it was a movie.

That time with Mikeyy is etched in my soul as a perfect snapshot of—not my life passing before my eyes, in the dying sense—but more like a haiku, capturing what it was all about.

When the meteor show was over, I had a hard time keeping my thoughts from spiraling out of control. A sensible part of me, that I had to dig way down deep for, took all the other parts of me, and put them to bed.

Not wanting to wake Dave, I lay there, deciding to wait out the night. I waited for him to wake. I waited to see if it would just go away. I waited. And prayed.

Since my thoughts like to play connect the dots, this would be where my inner Lady Macbeth spoke up, as “Out, damn’d spot” were the words that came out. This seemed like a reasonable prayer, so I went with it.

I spent a lot of time trying to figure out what to say to Dave when he awoke. The truth is, I generally obsess over just about anything I even think of, processing it at from every angle before it gets “on deck,” on the tip of my tongue. Just to make sure I say what I mean to say, and that I articulate it the way I mean it. Extroverting is not my strong suit. I can do it, but I don’t think I do it very well. And it wears me out. I had nothing by the time he woke up. I was worn out, wound up, and ended up just winging it.

Some words tumbled out into the air and then seemed to settle in a cloud over Dave. He groaned one of those “groanings which cannot be uttered,”9 (like he already knew, too) and fearfully, mechanically, reached over toward the spot.

Dave said that waking up to that morning was like waking up on the worst possible side of the bed ever.

I was still pretty groggy when Joules asked me about a lump she had found on her breast. She’s pretty random and often catches me off guard, but in twenty years of marriage, she had never asked anything quite like this. As soon as I felt the obvious lump, the fog instantly cleared and I was wide awake. My heart and mind started racing, but I tried not to let her see my fear. Outside I was saying, “Hmm, that’s strange,” but inside I was frantically praying, “Please, God, no! Please, God, no! Please, God, no!” Ever since we had a friend diagnosed with breast cancer, I held a secret fear that it might strike Joules one day. This fear only intensified when our friend lost her seven-year battle. Before that, cancer was something other people got. Old people. People with unhealthy lifestyles. People I didn’t know. But our friend was young, healthy (fit, even), a wife and mom, a good and godly woman. And she was one of Joules’s closest friends. Suddenly breast cancer was very real to me, and very scary.

I won’t ever forget that groan. Dave’s middle name, Wayne, means wagon, and I could just feel him bearing the weight that was to come.

He felt the spot; I had not imagined it.

He got out of bed and made a pot of coffee. Dave makes coffee for me every morning. Even brings a cup up to our bedroom and sets it on my nightstand to help me wake up, smell the coffee, rise and shine, seize the day. Yes, I am spoiled. I admit it.

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Then he headed to the study with his computer, and began researching what “not bad” things it could be. At first we were hoping it might be a cyst, or hormones. Or even a boil—at which point, I channeled my inner Job. Then he began adding big words that started with fibro– and pap– and ended in –oma, and my brain went all foggy again.

I poured another cup of coffee and called my sister, Jennie, who lives in Charleston, to tell her about the damn spot. She’s my baby sister, but also my best friend. She’s also a little ADHD. I happen to love her rabbit trails, so I figured I could thumb a ride on her distraction.

Jennie later described the rabbit hole she fell in when I told her about the lump.

The day Joules called me and told me about the damn spot she found, I asked her if she thought it might just be a pimple or something weird like that. I tried to be reassuring for her and myself. The thing is, Joules has always been the strong one, and almost like a mother to me, all my life. And to me, nothing bad could or would ever happen to her. But when we hung up the phone, the knot that seemed to have tied in my throat came undone, and my tears broke free. My glass is not always as full as my sister’s, and it sort of felt like it had just tipped over.

Dave made an appointment with my gynecologist for three o’clock that afternoon. I had chosen her because I was not really into doctors at the time. She was a naturopath, but also an MD. Basically, she was into alternative/non-traditional—with leanings toward Eastern—medicine. I liked that she was not a traditional medical evangelist, but had that training as well, in the palette of her doctor’s bag. I did not worry that she would jump to any radical medical conclusions because that was not her holistic style. I felt we were sort of on the same page and that everything could be OK, because she was the most likely doctor to find alternative explanations for the spot, and alternative ways of spot removal.

Meanwhile, Dave told me I should go ahead and go to a tennis clinic I’d already signed up and paid for, to try to keep my mind off that damn spot until three.

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—So that’s the end of the chapter, but obvs… there’s more chapters, and way more to the story besides just me standing there waiting for the tennis ball to cross the net so I can CRUSH it! So feel free to stay tuned to see what haps next. Or if you are impatient as hell like me, SHAKEN NOT STIRRED…A CHEMO COCKTAIL is avail on Amazon and Kindle. Click HERE. The Kindle version is avail for $2.99 with the purchase of the paperback, which is $9.99. On August 20, in commemoration of the day I heard the C-word, the Kindle version will be FREE.

P.S. Here’s the iTunes Link to the “Cancer is a Bitch” Song by the Kicked-in Fence aka my Redheads<3 To download the Cancer is a Bitch song, click HERE. It’s only 99 cents, but you should see what starving artist college kids can eat for 99 cents these days!

I’ll post the music video as soon as we’ve put the final editing touches on it.

What Are You Manifesting?

I couldn’t help but smile, which helped me relax a little, when she started handing out post-it notes. I love post-it notes. I’m forever putting those sticky reminders all over the Evanshire to try and help me remember shit. Lists. Prayer requests. Blog fodder. Vlog ideas. Quotes. Addresses. Dr. appts. Songs I want to download. People I need to thank. Writing ideas….

Post-its

But I’d never even thought of using them as an icebreaker before. BAM! Already got my first takeaway from Jen Pastiloff’s Manifestation Retreat that I was on, and we had barely taken our seats, cross-legged, on the floor, side by side, forming a large circle. Like a tribe. At which point Jen handed out smiley face colored post-it notes, each pregnant with possibility, all of them glowing like a blank pages do. Expectant. Waiting to be written.

“What are you manifesting?”

The way Jen threw down those 4 little words was a lot like Bobby Flay throwing down one of his challenges, with some Heisenberg mixed in: Wanna cook? Just. to. shake. things. up. But shaken, not stirred.

I’d driven for 2 days to come to Jen’s yoga/writing retreat in the Berkshires, to kickstart the writing process for a couple projects I was was ready to dive into. I was manifesting a prequel, of sorts, to my cancer memoir, SHAKEN NOT STIRRED…A CHEMO COCKTAILAnd also a sequel, of sorts.

Jen told us to write down what we were manifesting that weekend on the Post-it notes, and then to get up and go stick them in the middle of the circle of the tribe of beautiful souls we hadn’t met yet, but would walk beside, that weekend during Jen’s Manifestation Workshop.

We’d all come to Manifest a certain goal or dream aka to make that shit happen, the way Jen breaks down the word Manifest so there were 40 Post-it notes in the middle of our pow WOW. We’d made it rain Post-it notes. And they were written.

Mine said, HOMESCHOOL HAPPY HOUR…IT’S 5 O’CLOCK SOMEWHERE, KIDS! And, BOTTOMS UP…”GETTING OVER” CANCER. 

I’d post a picture of it, but I don’t have it. After all the Post-its were out there, sitting there like yellow badges of courage, Jen told us each to get up and grab a Post-it that wasn’t our own. To keep. To remember. To hold what they are manifesting UP. I purposely chose the last yellow badge of courage left on the floor. I do fortune cookies this way too. I could explain, but then we’d end up falling down some rabbit hole. And also I’d probably get hungry thinking about that cookie too much. And squirrel! Like that, this post would be history. So thankfully this post is about Post-its, which are sticky reminders. So hopefully I’ll remember to stay on task. Like I’m remembering the yellow badge of courage I brought home with me, and the beautiful soul behind the badge. It is hanging on a wall in my office, where I keep Post-its of prayer requests and peeps I pray for.

And one of those beautiful souls has mine. But I believe they are all cheering me on, as I am them, as we all are each other. Like a tribe.

“If you knew who walked beside you at all times on this path which you have chosen, you would never experience fear or doubt.”

In honor of that, and in light of that which I was/am manifesting, I thought I’d throw down a possible prologue, of sorts, for the project on the front burner, my homeschool/parenting memoir: HOMESCHOOL HAPPY HOUR… IT’S 5 O’CLOCK SOMEWHERE, KIDS!

Prologue

Skyfall

The first time I saw my first book, SHAKEN NOT STIRRED… A CHEMO COCKTAIL had finally hatched on Amazon after 18 months of blogging my way through breast cancer, 8 months of writing, and 11 months of editing, it was as if the heavens opened up and I felt so way up high that I thought I really could see somewhere over that rainbow where dreams really do come true… and then I read the fine print. Or rather, the fine misprint in the form of a parenthetical aside to the title: (Volume I). That’s when the sky fell. I was definitely not in the mood for a volume II, to my breast cancer memoir, if you know what I mean.

I got the kink worked out with Amazon, but I guess it’s a fairly reasonable thing that people, whether or not they saw the Amazon typo, started asking me, “When does the sequel come out?” Or, “Is this one going to be STIRRED NOT SHAKEN? Um, no. That wouldn’t be very James Bond of me, now, would it? The truth is, the mere thought of another volume, another chemo cocktail, is where I channel my inner Chicken Little and can picture the sky fall.

Which I can totally imagine being the theme song (and a Bond song to boot) if I were to write that sequel. Which, this is not, thank God, and God willing, may I never have the unfortunate occasion to have that sequel to write.

The last time I saw the sky fall and I found myself smack dab in the middle of my hopefully one and only breast cancer memoir, it fell on top of me and nearly took me out. Literally. It almost killed me.

Like I wrote in the prologue of that hopefully one and only breast cancer memoir, I’ve always been a writer and I have always dreamed of writing books ever since I cracked the code and learned to read. I just never ever would’ve could’ve imagined the story I’d have to, quite literally, “get off my chest” and that would become the subject, not to mention, the antagonist, of my first book. Which, in an ironic twist of fate thanks to the genre gods, landed it in the disease section of Barnes & Noble. This is not the end either, though. Let the books fall where they may. It’s still a dream come true. Not to mention…the last page was not the end of my story. Spoiler alert: the hero of the story is somewhere once upon a time in a not-a-chemo-cocktail kind of a sequel, hopefully a series.

But this is not the end…of that story. Even I’m still wondering what happens next. I mean, c’mon. It’s a memoir not a novel. I don’t write the plot. I just try and go with the flow, enjoying the ride, sharing moments and making memories with the people I love, collecting new friends along the way, keeping a decent travel journal, taking lots of pictures, and sending plenty of postcards.

This is what came before that story. B.C. or before cancer, the prequel to SHAKEN NOT STIRRED…A CHEMO COCKTAIL, which chronicles my “cancer era” or C.E., or my life A.D., after diagnosis, if you will.

Before I became radioactive with a chance of superpowers, using them to fight cancer and also to write, I had some big ass glasses like Clark Kent or Fearless Fly and was holding down a pretty cozy job with ridiculous crazy hours as an accidental homeschool mom.

Back then I taught writing more than I wrote; although I wrote whenever I could, read about writing in all the great books on writing not to mention the classics I assigned my Redheads to read, thought about writing while grading papers, and dreamt about writing one day when we all graduated and I retired.

This is the book I thought I would write first. Kinda my “Confessions of a Homeschool Mom.” After they were all successfully situated in college and I was pretty sure they had all survived homeschool safe and relatively sound.

I was so enchanted with that story and the development of my three main characters that the plot twist when the sky fell and I almost didn’t survive homeshooling not to mention, my life, caught this supporting character by surprise. There’d been no forshadowing. But the sky fell anyway, and when it did there was nothing we could do but let it. So we let it. But on our knees. And together. Before cancer was the unfortunate subject of my book, it was the most unfortunate subject in our homeschool. But it wasn’t the only subject in our homeschool; although in a sense, it tested everything that had gone before the sky fell. Before cancer. So BC is where the confessions of this homeschool mom begins. And might as well start at the very beginning, before BC, to the A. Which comes first in the alphabet. Which is one of the very first things kids learn in school.

Chapter 1 (Cue Jackson 5)

ABC 

Easy as 1-2-3. This was not the first thought that crossed my mind the first time my husband, Dave, brought up the idea of homeschooling our children to me when I was pregnant with our first child. First of all, I hadn’t actually even heard of homeschooling back in 1990 when I was knee deep in What To Expect When You’re Expecting despite the fact that I couldn’t even see my knees for the belly. My first thought was more like, “What the F is homeschool? Then Do-Re-Who-Me?” Then I pretty much summed things up when I hyperventilated, which was a perfect time to practice my Lamaze breathing techniques he he he hahahahahahahaha.

It seems appropriate to end on that note since I only intended to give a little teaser to chapter one.

So this is me, taking the next step and throwing down a shitty first draft of a possible beginning to my next book. BAM! That’s what I’m manifesting. That’s the shit I’m trying to make happen. That’s me, trying to do what I was created to do, what love compels me do. Like Jen says,

“At the end of your life, when you say one final ‘What have I done?’ let your answer be, I have done love.”

I have done love

What about you? What are you manifesting? Please share in the comments, or send me an email, or If you want to write it on a Post-it note and snail mail it to me, I will stick it on my wall.

 

Indy Race for the Cure

I don’t have enough back to pin enough “in memory of” and “in celebration of” papers on my Race for the Cure shirts. This, is a very sad but true fact.

Damn cancer.

That is why I can’t seem to get enough of Racing for the Cure. It’s not just a 5K. And I don’t walk it alone. I carry a lot of peeps I love with me. They ‘aint heavy, they’re my sisters and brothers. Yes, men can get breast cancer, too. But no, I don’t just write breast cancer sibs on my shirt. I hate all cancer. I have friends with brain, cervical, kidney, leukemia, liver, melanoma, ovarian, prostate, thyroid… cancer on my shirt too.

The night before the race I like to spend some time thinking about all my way too many friends who are fighting or have fought the big damn C. It’s sweet communion as I write their names on my shirts. I think of some of them, resting in peace, and I feel lucky to have known them, to follow after them, to race in their memory. I think of the rest, like me, who are still running our race and I hope we win, and find a cure. Which makes me think of everybody else I know… which makes me run harder. Cancer is a bitch. Don’t want to write any more names on my shirt.

This race for the cure was special, because I ran it with my Mum, who is also a survivor, and my daughter Amanda’s friend Kiley, also a survivor (cervical). Even though I had genetic testing and was found NOT to carry the breast cancer gene, my Mum was diagnosed with breast cancer. Right before my very last-23/24-chemo cocktail. I know, it sucked, as much as it sounds. But she is doing well, currently also cancer free!

Here we are the morning of the race. On our marks, get set… but first, a publicity shot with sock monkey. And… Go! Here’s Mum and Kiley in the middle of the sea of pink. And it was a sea, at least 41,410 peeps deep. We took note of race numbers while we walked, to see just how many peeps were in this sea. 41,410 was the biggest number we found. There might have been more, but there were at least that many. Yikes. How cool is that? To walk with so many? To share in this fellowship? To be part of something so big?

My number was 504.

I have no idea why this uploaded sideways. I tried it twice. Whatever. It is what it is. And, now that I come to think of it, somehow appropriate. I call it, “Caffeinated.” Although, truth is, I really wasn’t very caffeinated. First, it was freaking freezing out, so I was using the coffee as a hand warmer. And second, I was trying to be smart since we were racing and not potty dancing for a cure.

Here are a couple of cool random photos that I really loved from the race:

That tiny dot in the middle of my poor photo is a giant “PINK” elephant, courtesy of the Indianapolis Zoo! How freaking cool was that?! Luckily he didn’t trumpet and spray us all with water from the fountain of his trunk, because it was so cold the water would have turned into ice cubes and that would have been one hail of a mess.

As you can see, the Indy dogs were not to be outdone by the breast cancer aware elephants. This was my personal favorite, a dog sporting a save the tatas t-shirt.

Speaking of Save the Tatas, I superheart this foundation. As you can imagine, I especially connect with their sense of humor. And besides humor, in the fight against breast cancer, they promote awareness and fund cutting edge research toward a cure. Check them out at www.savethetatas.com. Use my discount code: “Shaken” at the checkout to receive 15% off your entire order!

#98 Save The Tatas Foundation

All in all, it was a hot race on a cold day. The only thing missing was pink SURVIVOR bracelets:(

Couldn’t find one anywhere. About froze my bum off looking for one to replace the one I broke last week. It’s funny how I sort of feel “vulnerable” without one on. Like a superhero without their cape or something. I’ve outlived 4 so far. Now, it’s become a challenge. Joules 4-Survivor bracelets 0. That’s right, I live hard.

andthat’swhyineedanotherpinksurvivorbraceletfix

All I can say is I hope they have them at the Race in Atlanta.

Well, the trail for pink SURVIVOR bracelets might have been cold, but boy oh boy, did the hot tub feel good after. Ahhh…

#99 Hot tubs

Despite the cold, I really like doing race for the cures. I like getting caught up in the fervor to end breast cancer.

#100 I like imagining a world without breast cancer.

I hope to see that reality.

For all the peeps not on my shirt.

And in honor of all my peeps on my shirt. Here are the credits, in no particular order:

Tiffany Romero Floth, Karen Wellington, Missy, Amy Inkrot, Sue Thompson, Shelly, Marty, Mum, Mary Kate Bourquin, Kiley, Maria Meyer, Yott’s Mum, Cathy Baker, her Mom, and Grandma, Uncle Bill, Auntie Cheryl, my friend Rebecca’s hub, Mary Janet, Kandi Castles Ferrandino, Roxanne, Ron, his wife Sue, and his daughter Amy, Kiley, her Mom Jeanne, Kristi Frazier, Monica, Heather Ray, Patty’s Mama, Mike’s Dad, Jennie’s Mom, Sonya Montemayor, Paige, Mary Jo Cropper, Savannah Hope Swandal, Leanne Davis, Janet Cross, Leah Hartlaub, Keith Gilbert, Mean Jeanne the machine (Megan’s Mum), Janice Hubbard, Kim O’Donnell, Katie, Rich, Big Joyce, Donna Scheffler, Nikki, Julie Garvin Luce, Cynci Wenck, MaryBeth Dupo, Crystal Tatum-Brown, Flora Melchionna, Alison Tarbell-Irwin, Christine Lalama, Linda Wimmers, Susan Fuchtman, Vanessa Tiemeier, Melissa Ward, Marcy Emmons, Rachel Marks, Anita Dalton Lupp, Don Boudinet, Krysti Hughett, Gail Konop Baker, Marilyn Teague, Anita Mason, Julie “Cruise” H., Anne “Etch a Sketch” E., Floyd Penrose, Leona, Sherry Kemper, Kim Wanamaker’s sister, Tracie Metzger, Tami Boehmer, Irmgard Allen, Patricia Fitzwater, Julie Butler, Martha Butler, Kathy Arsenault, Karen Dubois, Jill Davis Lamaster, Heddit Ott, Lou, Sheila Henderson, Phyllis, Carol Egenolf Bramlet, Lori Warner, Shelly Spate, Deb Mulligan, Stacey Karlosky, Charlene Staats Rack, Cyndi and Bill Walsh, Michael Hernandez, Debbie Smith, Jo, Ann who hates pink, Geralyn Lucas, Lance Armstrong, Daria, and me.

#101 the number of peeps I “walked with”

That’s… too many peeps.

Let’s… find a cure. Meanwhile, everybody else, stay off my shirt!

Traveling Mercies

#83 I super heart traveling.

#84 Marriott rewards.

#85 A room with a view of the canal, downtown Indy. The cutest little big city around.

#86 Catching up with old friends.

#87 Sleeping with the windows open, listening to rain fall outside.

#88 That I won’t need the sunscreen I forgot to pack, tomorrow at the Indy Race for the Cure.

#89 I like being part of something bigger, doing something that matters, getting up on a Saturday morning for a reason, running for a good cause, the communion of survivors.

My Indy Race For The Cure T-Shirt

#90 I like writing all cancer siblings’ names on my shirt and taking a walk with/for them.

#91 I like waking up in the middle of the night to pray and count gifts.

#92 Listening to trains in the middle of the night. It reminds me of Europe. I really liked feeling so connected to everywhere over there.

#93 Hearing planes overhead encourages my imagination to take-off.

#94 Noticing the rain has stopped and birds have begun singing.

#95 Fresh air after the rain.

#96 Going back to sleep to a lullaby the birds are singing.

#97 Outliving pink SURVIVOR bracelets that I hope to replenish and stock up on tomorrow;)

Plucking Daisy Petals on a Sunny Day

#33 The way a grapefruit sounds like it’s blowing a kiss when you dig in with a spoon.

#34 Impromptu coffee dates with my Amanda.

#35 Followed by impromptu lunch dates with my Matt.

#36 Sunny days

#37 Mango Iced Tea

#38 Eating with chopsticks 

#39 Fortune Cookies. Today’s: Luck will visit me on the next new moon.

#40 The way my Redheads have such for-God-so-loved-the-world-shaped&size hearts

#41 Following after my Redheads as they follow after their dreams

#42 How old I was when I got cancer and started counting up, not down, my days.

#43 Looking for things to be happy about.

#44 That I can be hungry, make a phone call, and a pizza comes to the door in 30 minutes.

#45 How old I am right now, which is day 939, btw:) All because he loves me, loves me, loves me like crazy.