Tagged Breast Cancer

Pre-Surgery Pep Talk

[Update: I’m home from the hospital. Doing OK. Managing discomfort rather than pain yesterday and today. Today is better than yesterday. Yesterday was WAY BETTER than the day before that. But thankfully that day is in the rear view mirror and I got the pedal to the metal. Anyway, the scoop is: Every day I get a little bit closer to feeling fine *nods to Sheryl Crowe _/_. We are still waiting on the path report for a proper post-surgery report. We expect it will be a good report and will post STAT when we get the good news. Meanwhile, here was my pre-surgery pep talk to myself, with a little help from my writing/creativity/bigmagic sensei Elizabeth Gilbert. She threw down THIS SUPER AWESOME POST<<CLICK IT,  on her FB on Friday, and I thought about it all weekend, while I was getting my shit together and composing myself and my thoughts for my pre surgery pep talk to myself. The coolest thing about the process of dialoguing with one of your favorite writers like that, is that it pretty much feels like you are hanging out with them, not just chewing the fat, but sucking the freaking marrow, talking about all the important things. That’s my idea of damn good surgery prep, the kind that’s gonna pump. you. up! Which is exactly what hap’d…]

Monday, August 3 Noon: Believe it or not, I’ve had a pretty awesome weekend getting ready for my surgery today. ‪#‎OperationOutDamnGolfBall‬ ‪#‎FORE‬ (Which is at 1:30pm in case you didn’t get the memo and want to pray my surgical oncologist has a good “golf day” taking out the cyst and the whole she-bang.) Anyway, besides the pre-op testing I did at the hospital on Wednesday, here’s some of the other important prepping I’ve been doing before my surgery and hitting the sidelines: 1) Got ‪#‎fightingcolors‬ ‪#‎flyingcolors‬ haircuts with my little warrior sister Maya the Magnificent. 2) Finished Deepak Chopra‘s & Oprah’s 21 meditation day adventure. 3) Run as much as possible. ‪#‎runhappy‬ ‪#‎runfree‬ ‪#‎runwhileyoucan‬ 4) Finish moving in as much as possible. Unpack books. ‪#‎konmariallthethings‬ 5) Take my mom to the dentist. 6) Family night out at Red’s game with Hubcap’s company. 7) Help my sweet Mateo move. 8) Groceries. 9) Laundry. 10) Have ‪#‎allthefun‬ I can squeeze in. Like: sneak off to Indy to go see Liz Gilbert speak/go see Trainwreck, eat popcorn with real butter, and lmfao/watch the TIG doc with the fam. 11) Get prayed over at church. 12) And THIS…

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Click HERE to read Liz’s super awesome post.

I haven’t been able to stop thinking about THIS post Liz Gilbert threw down Friday. In my pre-surgical procedures I’d been casting a vision for the down-time of my 6-8 week recovery (Finish selection and begin editing ‪#‎Route66‬pix for photo exhibit. Record audio book version of Shaken Not Stirred . . . a Chemo Cocktail and rerelease hard copy with 7 year cancerversary update and fist chapter of next book. Walk my butt off, since I won’t be allowed to run. My Route 66 Marathon training must go on.) But THIS post made me want to cast out a little further. When I got diagnosed with cancer 7 years ago on august 20th, I had a hard time seeing myself in future tense. (The fact that I have almost made it to my ‪#‎lucky7‬ year cancerversary BLOWS MY MIND!) Part of this was good for me, though, cuz I got pretty damn good at being present in the now. But this weekend while I’ve been sucking the marrow out of life, the present, and all the things, I also have been sipping ok slurping on THIS delicious post.

So I thought I’d ante up with my own thoughts about where I wanna be 5 years from now…

-12 years cancer free
-audio book version of ‪#‎shakennotstirred‬
-re-release #shakennotstirred 7th cancerversary edition with update and first chapter of Route 66 Bucket List Road Trip book
-2 more books published (#Route66 Bucket List Road Trip and Homeschool Memoir)
-Route 66 photo exhibit
-enter photo contest
-winter in a warmer climate
-figure out how to do what I do, doing what i love, to pay my way around the world
-get TSA priority boarding
-fly first class
-Write writing workshop based on Alice in Wonderland
-Take yoga teacher training or life coaching
-learn to make an origami crane. make 1000
-learn to play my uke
-do a Triathalon
-publish a book of my poetry
-take a selfie with Jesus in Rio
-spend cervantes bday in Spain, hike the buen camino
-road tripping the country with my friend Isis to photograph 800 breast cancer survivors for the Grace project
-and because go bold or go home, and to tag onto Liz Gilbert’s list, I’d like to write a tv show with her.
-…

Well, that’s a little where I wanna be 5 years from now. Especially right smack dab middle of that yummy ellipsis…

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What about you? Anybody else wanna play? Where do you wanna be 5 years from now? ‪#‎castaway #comesailawaywithme‬

See Her Again

It was a long day, the day I sat with my girl Char’s son David during her breast amputation from her war with cancer. I know the pink, fluffy, more euphemistic term is mastectomy but when your friends keep dying from this bitch of a disease, or if you’re like me, flat as a walking billboard for breast cancer…well, euphemisms just don’t…”cut it”.

It is what it is, and I just feel like calling it like I see it when I look in the mirror and honor my own battle scars. Or when I try to buy a bathing suit. I mean, I’m a glass half full kinda girl, but even all my optimism isn’t gonna fill two empty cups, if ya know what I mean;) But I digress. It’s been a long day, trying to get myself to sit down and write this post about the celebration of life services for my friend Char, which will be on Saturday, July 11, from 2pm-3ish, at Cincinnati Vineyard’s chapel.

I was introduced to Char at my old church, and entered her story at that holy inciting moment right after her diagnosis, right before the amputation. This is how I meet more people than you can imagine. Unless you’ve had breast cancer too. Which I hope you haven’t and never will. #iamthe1in8 #youbeoneoftheother7

Anyway, Char and I were fast friends. #chemoisthickerthanwaterandblood So obvi, I connected her to the rest of our “cancer club” at church aka The Fellowship of the Bread, Wine, and Chemo, and to The Pink Ribbon Girls, the local breast cancer support group whose mission/motto is: No one travels this road alone, and to my oncologist, and to the Grace project, a  photographic project dealing with body image after breast cancer, which was pretty much ended up being Char’s last word to cancer.

Her battle against breast cancer was a long damn day. But it was also too damn short.

I miss her.

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She loved me fierce and I will miss her something fierce. I imagine my girl Char tackled Jesus with a big fat sloppy wet kiss just like this, cuz O how she loves. She is the true BIG C; cancer ‘aint got nothing on my girl CHAR! But it sure makes my shoes feel so freaking heavy on my soggy feet.

I was on my way to visit her in the hospital when her daughter Ashley called me from Char’s side. The doctors had just told her that Char’s body was shutting down and the ventilator was the only thing keeping her here. Char was in unbearable, unspeakable pain. She was ready to go home, and definitely deserved the rest she had fought so hard to win.

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Talk about “Just do it.” Char did. She kept the faith. She finished the fight. AND SHE WON NOT LOST. She is finished with cancer. #peaceout Char. I’m doing a victory dance for ya, sister…but I’m not gonna lie, there are tears.

Like I said, I was on my way to the hospital when Ashely called me. I was on my way out of town, to go run an all-night-long 10-hour endurance run, when when Char was admitted to the hospital a few days before, with what they thought was probs pneumonia cuz she had just done the #hungerwalk in Cincinnati a few days before. Only 3 days after chemo. And in the rain. I didn’t go visit her before the race, on my way out of town, because I was on an antibiotic and I was afraid to bring my germs with me. The hubcap went in my stead, and told her I was off to run a race, that I needed her to be on the job praying for me while she was resting in that chemo, and that I’d come visit her as soon as I got back. I also asked him rub her adorbs bald head for me, for good luck, which he did. And he and a friend from our “cancer club” prayed over her. On race day, another friend of ours, from The Pink Ribbon Girls, also checked in with her for me (Thank you, Kim) and reiterated my “charge” to Char, and also petted her sweet head for me.

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This selfie was taken at Char‘s Grace project photo shoot a few weeks before Char’s passing. Char’s shoot was in the midst of a weekend of events that I was producing so I couldn’t be at Char’s shoot…which freaking split me in two…but Char knew that and so she asked for one more pic…of everybody rubbing her cute bald head for me since i couldn’t be there. #thatsamore

I’d written Char’s name by my heart on my race shirt, and was so freaking excited to show her that, and my medal, and to give her the pink sock monkey I’d run with in a backpack on my back, to give to her. When I left the house that morning to come visit her, all anybody knew was that they were going to take her out of the coma. So I packed a bottle of my famous “Cancer is a” Bitch wine to come break bread with her in #fuckcancer style. And of course my medal to show off! It had been a long day, without my friend. And I was so. looking. forward. to telling her all about it when I saw her again.

I came. I saw my friend Char take her last breath. I was conquered.

This is the last I saw of Char. One week before she passed. This pic our “cancer club” brother Arch Cunningham posted from the Hunger Walk just a week before Char passed. This is the Char I knew and loved. The Char who loved me FIERCE.

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This was my crazy cancer ass kicking sister Char Scott.

This was her doing the #HungerWalk in #Cincy last week (Memorial Day).

This was 3 daze after chemo, which as everybody who has been there done that knows…is NOT one of the good daze.

This was one week before she was to shed that gorgeous shell, kicking cancer’s ass once and for all.

This was/is/will always will be her victory lap and this her victory cry that will always make me smile.

Even if today it makes me cry a little cuz I will miss her as fiercely as she loved me.

This was my friend who loved me fierce,

out-loud, proud

like somebody who would walk/run/crawl 5K

in the rain

3 daze after chemo

to fight hunger in her world.

This was my friend Char.

She did love.

And she did it fierce and with reckless abandon.

And that is how I will remember her.

And this is how Char wanted to be remembered. Shortly before her passing, Char was so super freaking excited to participate in The Grace Project. Grace is a series of portraits of women who have battled breast cancer and suffered amputation in the waging of that brutal war. It’s a beautiful, powerful exhibit dealing with body image after breast cancer. Grace photographer Isis Charise finds inspiration for the project in Greek Sculpture #keepcalmandlovegreece so she frames the women in the context of Greek goddesses. Isis is in process of photographing 800 women across the country. The eventual Grace exhibit will demonstrate a day in the life of breast cancer. 800 women are diagnosed every day in our country. This has to stop. This is how Char wanted to be remembered. Beautiful. Empowered. Having kicked cancer’s ass. It was her last word.

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Immortal. The lovely Char‘s stunning gorgeous IMMORTAL Grace project portrait, taken by Grace photographer Isis Charise. Char was so. freaking. excited! and proud out loud to do her photo shoot, to become a Grace goddess, and especially, to be part of something so beautiful and meaningful and superpowerful for good. Grace is a series of portraits of women kicking cancer in the balls, and #shaken up the conversation on what is beauty? by empowering women who have suffered breast cancer and #amputation #MastectomyisaEuphemism of the parts society erroneously and cruelly deems as the critical lady parts…to battle through that shit as well, and embrace their body image and their own undeniable breathtaking beauty. #transcendencemuch? (Cuz what woman in America DOESN”T deal with body image issues?) This beautiful portrait of beautiful Char, taken on April 11, THE DAY AFTER CHEMO and 6 weeks before she shed that gorgeous shell, will hang with 800 others in an eventual complete exhibit…a beautiful breathtaking demonstration of ONE DAY IN THE LIFE OF BREAST CANCER IN AMERICA. (Yep, that’s what those 1/8 numbers mean. And that’s why we have to find a cure ALL THE CURES for cancer ALL THE CANCERS. #fuckcancer)

I Walk (Hop/Skip) The (Dashed/Dotted) Line

WalkTheLine1956

So I’ve never done this before, but sometimes I get a note from somebody who’s reading SHAKEN NOT STIRRED…A CHEMO COCKTAIL, and today I got one that just started my day off with the biggest and best kinda bang like kaPOW! and I thought I’d share…

“I’m reading the page in your book with the Boob Lube and had to stop to tell you how hella-fabulous it is. I mean, seriously…a dashed line for me to dog ear the page? You, my friend, are a literary genius. Yep. Right up there with ole Bill S. himself.” ~Kim.

First of all, thank you, Kim. For this kind note, your kind words…but also, let me not neglect to say, for your service. _/_ YOU. so. very. much. made. my. day. today. Before my day had even started! Your note was the first thing I read this morning. Before I’d even had a sip of my coffee. But boy did it make my coffee taste like the best. cup. ever!

I remember cracking myself up about that dashed line. I had to ask my youngest son, Mikeyy, to help me put it in the book since I am so. very. NOT. tech savvy. Also I’m basically not good with straight lines (even dashed ones) (even when I haven’t been “cheers”ing;).

Anyway, most of the notes I get about SHAKEN are from peeps downing their own damn chemo cocktails…and they all humble me down to the ground, which I figure is a pretty damn good praying position, so that’s how I usually roll with it. It means more than words, to be able to walk with someone through their own journey, as they walk through mine, via SHAKEN.

And this note I received this morning…from a badass military veteran/breast cancer warrior sister/friend of mine reading my book and sharing my joy over that dashed line…walking the line with me, if you will…also makes me hit the dirt, heavily laden with gratitude. So I thought I’d lighten the load a little and share;)

And while I’m in this uber fab/fun sharing mood, I thought, why not also share this link about Boob Lube, which I remember making me LMFAO a little when I found out about it when I was writing SHAKEN. I thought/think it was SUCH a superpower freaking clever product to encourage breast health awareness. Still do.

And while we’re on the topic of breast health awareness…this would be a mighty fine time to go check yourself. In fact, I’ll end this post now so you can go do that.

Paper Peonies and Dandelions

Dear V,

One. Year. Ago…

V's Wave

It’s true time flies.
(I threw a clock out the window once
and proved it.)
But Salvador Dali had the right idea
With those weeping clocks…
On days like today
I don’t believe time heals.
And why should it?
Why
Would I ever want to
“Get over”
YOU
?

You left a beauty mark on my soul.
Your mantra is etched in me
The ink is dry
Except for teardrops…
Which keeps dotting the i’s
In Live Sincerely.

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I miss you.

Meanwhile here I am
Spending time
This day
In the Big Apple.
Isn’t it ironic?
Maybe a little too ironic
—or maybe it’s poetry?
Because this is where we met
On that serendipitous day in October
when I saw you standing
(beside yourself)
aka
Next to
Your breathtaking SCAR Portrait
Hanging in Soho
At the very first SCAR Project Exhibit
In 2010.

V exhibit

S.C.A.R.
[Surviving Cancer.] [Absolute Reality.]
You and me both.
And both of us from Cincinnati.
Get.
Out.
Of.
Town.
Funny how
That’s how we met.

That time when time
Put the pedal to the metal
While we were working our asses off
on The S.C.A.R. Cincy Exhibit—
When the absolute fucking reality of surviving cancer
Was thrown in our faces
In the form of a headache you had
that wouldn’t clock out…
2 weeks before opening night.

How?

For YOU
because you said “the show must go on.”
Especially now.
There was no try
Just do
We did it for you.

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It was one of the hardest things I’ve ever done in my life
But not as hard as saying goodbye
365 days ago
when
you
punched
out
…and flew away with time…

I miss you.

This V-shaped hole is most def the hardest thing.
‪#‎fuckcancer‬
I hear the echo of your voice
That I can’t remember anymore,
“The show must go on.”
And I still sometimes wonder how?

I was wondering that the other day while I was driving here.
I saw a flock of birds
in a V-formation:
a Peace sign in the Sky.

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Every time I see one I think of you.
And every day
For me (and for V) I am…

Living sincerely,
Joules
xx

Drunkard’s Prayer

I know it’s throw back Thursday, not throw UP Thursday, but I just got a phone call from my oncologist’s office, letting me know that it’s time for my quarterly check-up…and I almost tossed my cookies (or in this case, nachos). Happens every time. That first chemo cocktail I downed six years ago yesterday, waking up with my first chemo hangover six years ago TODAY… has. left. it’s. mark. on. me. Besides the port scar. Which I had a big c (namaste _/_ Laura Linney) tattooed on—copyright that cancer.

Photo Cred goes to my friend Isis Charise, photographer of The Grace Project

Anyway, so this past weekend I went to a Jen Pastiloff Manifestation retreat in Ojai, California. It was a gift from the hubcap aka Mr. Joules, for my 6 year cancerversary, which I just celebrated August 20th. Now, this is a thing that drives my Redheads bOnKeRs (because they keep their “letters to Santa” constantly updated on Google docs) but I don’t have a list. Mostly because I already feel so lucky that I can’t even imagine what else in the world I could possibly ask for. But I asked for this because I felt I could use a little inspiration boost(er) before my 6-year check up this coming Monday.

One of the exercises she had us do at the retreat is the inspiration for today’s #tbt pic/post. This is where I feel like it’s only fair to give you a #CheeseAlert—so you might want to go pour a glass of wine to go with the cheese I’m about to throw down not up for throw back Thursday.

The exercise I’m referring to, was a writing prompt. The writing prompt flowed from a series of yoga poses. Somewhere in the ebb and flow of the yoga poses and the writing prompts, a beautiful breakdown occurs in places that were a little stuck. All the “I would/could/should/did/didn’t/have to/can’t excuses we all make. Something in the way she makes us do all those hi-YAH! kicks, makes us feel like we’re knocking down walls. (And we did.) Also, all those planks rendered our arms incapable of being raised, even an inch, to point out even one of those lame ass excuses that we all make for not manifesting aka “making shit happen” (the good kind) in our lives. I don’t know about you, but I have a boatload of excuses in my head. So many voices in my head. And way too freaking often, I hear them calling, “All aboard!” Next thing I know, I’m sailing away on a yacht called Hotel California where “you can check out anytime but you can never leave”.

Which is why it’s always a good idea to keep the voices in our head in check. Or, check-mate, as it so happened, for me during this particular exercise.  The writing prompt was to write a letter to ourself in the voice of someone who loves us.

“If you knew who walked beside you at all times, on the path that you have chosen, you could never experience fear or doubt again.”~Wayne Dyer

This is one of Jen’s themes. It’s also one of the magical things that happens at her workshops and retreats, when you look around the room at the beautiful souls who walked beside you through the weekend, and beyond.

I wrote my letter, to myself, in the voice of my husband. And here’s where the cheese enters. But not, as you might suppose, just because I’m the one stringing together said cheese. The truth of the matter is: Dave is just as cheesy as me. I was only channeling him, or I guess you could say, being the grater. Here’s a little slice (and no, I didn’t cut it) of the cheese:

Dear Joules, my jewel, wife of my youth and, I hope—NO. I know. Yes, darling, I know you have trouble seeing that far ahead, into the future, but I know. I know like I know Jesus loves me, and you, that we will be old together one day, like the couple in UP—but we won’t wait to chase our dreams. We are not waiting. The chase is on! And what. a. ride… Go ahead and put your hands up in the air. It doesn’t matter if you didn’t shave. I’m over here right next to you. I got you. Like I vowed when we were 22. And I believe you’ll still love me when I’m 64. And beyond. Even if you can’t see that far. I can see. This I know. I know enough for the both of us.

I forgot to sign it but I think I nailed it, and I have proof. I’ve been celebrating my 6 year cancerversary with this six part series of a half a dozen chapters from my book, SHAKEN NOT STIRRED…A CHEMO COCKTAIL, and there just so happens to be a chapter that Dave wrote for me. Kinda like a letter in the voice of someone who loves me…

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#tbt to the day after Christmas 2008 aka our 21st anniversary

 

Chapter 13
Drunkard’s Prayer

[Cue my fave band Over the Rhine. Click HERE to hear the song that is the soundtrack to this chapter.]

And by drunkard, I mean to give the microphone here to Dave (while I take a little break to pour another glass of wine) because he’s the one who got stuck with a handful of “in sickness” and “for worse” chips. If I were to write a six-word memoir, it would be Sorry I Cashed “In Sickness” Chips. And the sequel would be, I Hope It’s “For Better” Now. Anyway, without further ado . . . Dave.

Joules (or as I call her, Joule, for short, which I prefer to spell Jewel, if you don’t mind) is a sucker for Shakespeare. I am a sucker for my Jewel. A + B = C. It’s simple math, really. I believe even she could figure that one out and with one hand tied behind her back. Even if it’s the one with that little finger she’s got me wrapped around.

All that to say, I like Shakespeare too. Once I stood up on a bench in the middle of Borders and recited Sonnet 116 to her—it’s one of our favorites of his sonnets. And it goes, something like this… ahem: 

Sonnet 116

By Will

Let me not to the marriage of true minds

Admit impediments. Love is not love

Which alters when it alteration finds,

Or bends with the remover to remove:

O, no! it is an ever-fixed mark

That looks on tempests and is never shaken;

It is the star to every wandering bark,

Whose worth’s unknown, although his height be taken.

Love’s not Time’s fool, though rosy lips and cheeks

Within his bending sickle’s compass come;

Love alters not with his brief hours and weeks,

But bears it out even to the edge of doom.

If this be error and upon me proved,

I never writ, nor no man ever loved.

Shakespeare wrote, “Love is not love which alters when it alteration finds.” Surely he had not considered “the remover” to be a breast surgeon, nor “Time’s sickle” to be a scalpel, nor the compass of Time’s sickle to encompass his love’s breasts.

We’re not talking wrinkles, gray hair, and a little extra weight here. This is serious alteration. But when it came down to them or her, clearly they had to go.

I admit, initially I told myself that this will be a good thing. There will be reconstruction. My wife will be perky in her old age. But looking into the details, it quickly became obvious that this was not an option either of us wanted. But I have found, in true love, that there is a breastliness that transcends the physical and is more tangible than the flesh.

The only real difference this alteration has brought is that when we embrace, our hearts are that much closer together.

“Love is not love which alters when it alteration finds.” As I gaze on her even now, I hear my heart say, “Well then, Will, this must be love.”

Six of One, Half Dozen of Another (at least _/_Please, God?)

Today is my 6-year cancerversary. Hellya, I celebrate it. I celebrate every tiny little beautiful thing I can. (Sometimes if I can’t think of something, I make shit up;) An no, I don’t think cancer is beautiful. It’s a bitch. But, whoa. 6 YEARS, baby! That’s 2192 freaking amaze ball days since I heard that damn C-word aka #shakennotstirred day. That’s basically, two THOUSAND one hundred and ninety-two GIFTS. Every damn one of those days, a present that I’ve tried to unwrap the hell out of. Even the hard ones.

So, in my continuing series of blog posts sharing chapters from my book: SHAKEN NOT STIRRED…A CHEMO COCKTAIL, here’s a couple chapters about what went down at the Evanshire when my breast surgeon called and told me I had cancer. Chapter 6 is from my perspective and chapter 7 is in my Redheads’s own words.

By the way the Kindle version of my book is FREE today AND TOMO. So download away and please feel free to flip off cancer today with me as you do. Click HERE for the link.

Also, if you’d like to further “stick it to cancer” and also put a few pennies in my Redheads’s pockets, their “Cancer is a Bitch” song (which they wrote for me for my last chemo) is available on iTunes. I have no idea why this song hasn’t gone viral. I’m not even kidding or being a biased mama (even though I am absolutely biased about my Redheads, and even though I do kid around a lot.) For realz. They really are crazy good and this song freaking rocks. Click HERE for the link.

Chapter 6
I Don’t Know Why

(Cue Amy Grant, because that is the song I had on loop when I wrote this chapter.)

Dr. Stahl called me just before dinner. It was, actually, five o’clock. And that’s truly not a cheap shot, or an attempt at being poetic even if my life is freaking poetic; it’s just how the day played out. And boy, did I need a drink.

Pinot grigio, anyone? Yes, I had a pinot grigio. Or two. OK, maybe three. This happened to be one of those moments.

And the next time the clock struck five, I penned the following on my blogintheshire, which unfortunately got cancer when I did and turned into my cancer blog, where we posted updates for our friends and family:

THURSDAY, AUGUST 21, 2008

The Scoop

I’m sorry it has taken until five a.m. to get to this blog update. I’m not going to lie—this is not the easiest blog to write. This has not been the easiest day. Parts of it have been lovely, though, so that’s where I let myself drop at the end of the day, and that is where I find myself right now, sitting here, so I will start right there, if you don’t mind, and then open the fortune cookie we got from the doctor today in proper form, after I’ve digested some of the day.

The Redheads and I hung tight and close to home all day, which is one of my favorite things. We all slept in for the first time since this whirlwind hit. The boys did not sleep the night before my surgery, and Amanda has been burning a candle at both ends with everything and her new job and beauty school. I think I may have just passed out from exhaustion. Or maybe it was the Vicodin. But the point is, sleeping in is also one of our favorite things, and a good way to start a day. Unless you have to be somewhere and you are late. Which occasionally happens in our home—but not today.

On days like today the things that matter most are crystal clear.

My mum and sister and nephew are here, so that’s also nice to wake up to. I actually woke up to the lovely little pitter-patter of my nephew Brody’s sweet feet, who apparently swept up with Olympic fervor, was in training for the hundred-yard dash around the race track that circles my dining room and kitchen. You really can’t start training too early these days and I have to admire his dedication at two years old.

We all had a lovely picnic out on my back deck. My Redheads did a mini concert for us, which was the icing on top of lovely.

After lunch we watched a movie (Russell Crowe’s A Good Year—uh, dramatic irony, anyone?) to pass the time before the phone call. We did not just sit around all day waiting for the phone call. We had a really good day, and then the phone call came.

Dave is out of town. I made him go ahead and go on his business trip because I didn’t want to act like we were going to get bad news. He will be back tomorrow (Thursday) night.

That is how we are woven together.

I (had Mikeyy) conference Dave in, and the kids were right by my side, on speakerphone. The doctor said the damn spots were cancer. Grade 3, which is apparently aggressive. And if I understood the doctor correctly, the size of the three spots together was 2.3 centimeters. The one I felt was very near the surface and she had to scrape to get what she could of it, but she couldn’t get it all without taking some of my breast, which she didn’t obviously, at that time. But that’s at least going to have to go. We have some big decisions to make this weekend before we meet with the doctor on Monday at five-thirty p.m. to discuss and jump into our game plan. We plan to be more aggressive than the cancer. I’m told I’m a wee bit competitive, so hopefully that’s a good thing. We also need to go back and get some lymph nodes. And I think she mentioned chemo. Other than that, it was a fairly fuzzy phone call for me. It hit my Redheads hard and fast. Please pray for them anytime you think of me. I am not sure it has sunk into me yet, unless it is the pit that I have felt like throwing up since before dinner. But haven’t. Yet.

This is me, shaken. To the core. In front of my kids. I don’t know why.

I ordered the Redheads some pizza and some of my tennis girlfriends came over and we sat out on the back deck, drinking pinot grigio. Yeah, my girlfriends got my back. They B.Y.O.B.’d it, after they heard me sing “How Dry I Am” in the hospital. That’s what girlfriends are for.

They also delivered P.F. Chang’s to the Evanshire the night before, following my surgery. My cookie had a fantastic and apropos fortune in it that we are going with: Good food brings health and longevity. Not to mention, the first lucky number mentioned is 42, which is my age. And I believe it is also a significant number for galaxy hitchhikers. Yes, I have the T-shirt; Mikeyy made me one for my forty-second birthday.

That’s. Love. That’s all I really know right now.

So that’s the scoop. Thanks for praying.

That’s where things were. And me, bookended there in the gift of the present.

We’d like to invite anyone who lives near to come over and pray with us Saturday night at seven as we’d like to bring out the big guns of prayer to begin this battle with and cast ourselves into our Father’s very capable hands. And we go from there.

Hold my hand—sorry if it is shaking a little. Sometimes the sand moves fast. But isn’t it so beautiful?

Posted by Joules Evans at 5:17 a.m.

Like I said, I had my three teenagers huddled around me when “the call” came. The doctor said the C word and it hit my kids hard. From my perspective it was as if that damn word had knocked my kids over. I don’t remember breathing while I watched my kids succumb to the gravity of the moment as they fell to the ground. Literally. In three, separate sobbing heaps. Oh. My. Heart. Times three. Precious, shattered pieces on the floor. It was one of the most gut-wrenching mommy moments I’ve ever experienced. I desperately needed three laps and six arms right then. That’s really all I was thinking about at that moment in time when it was standing still . . . like that.

That moment was the inciting incident in my life. It changed everything. Like September 11 changed everything. Like writing a.d. on the very first check after Jesus was born. Time had been counting down to that precise moment of PAX—the ground zero of history—then all of a sudden we’re counting up.

I realize my inciting incident didn’t have the same global implications. But that mommy moment became a hinge that held me fast, in the now. And I found some traction to do what I needed to do right then.

I stopped taking notes as soon as I wrote down the word that knocked my Redheads over and made them cry. I dropped the pencil that I’d drawn from behind my ear. I stopped listening to what Dr. Stahl was saying. I dropped the phone. There were no oxygen masks in the room anyway, and time had sort of stopped, so I dropped to the ground, gathered my precious babies, and rolled them up in my arms. That’s how I stop, drop, and roll.

I did not process the fact that my doctor had just said I had cancer. Dave was still on the other end of the line with Dr. Stahl, processing everything. If it sounds horrible that he was out-of-town on a business trip that day, it really wasn’t. He had cancelled the trip to stay home for “the call” but like I said, I told him it would be like expecting the worst if he stayed. So he went, for me. I made him go. I needed him to go. Now I needed him to stay on the phone with my doctor. When I stopped, dropped, and rolled, he picked up the ball. Thank God. There was no time for him to stop, drop, and roll. There were more words to listen to, more notes to take, questions to ask, appointments to schedule, research to be done, decisions to be made, tears to cry, groans to be uttered, prayers to be prayed, a plane to catch, a sickly wife and three grief-stricken kids to come home to, phone calls to make, a business to run, insurance forms to fill out, dinner to be picked at, insomnia to be had, pieces of our world to pick up, after of course he finished this phone call, knowing there was no time to go look in the mirror and see what he was made of. That’s just how he rolls, when I stop, drop, and roll.

And that’s how we roll.

I don’t know why Dr. Stahl had to say the C word. I do know that sometimes words do hurt, though. No matter what people say about sticks and stones. Or rock, paper, scissors for that matter. Words beat them all.

I don’t know how I got cancer. Damn spot.

I didn’t know where all this was going to lead. Were my days about to begin counting down?

All I knew was my children might lose their mother.

I don’t know why.

All I knew was I loved them.

And all I could think about was right now. Right here. So I held them fast, like I wouldn’t let go.

Meanwhile, my mom and my sister, Jennie, were downstairs in the family room, flipping channels and magazine pages, fielding phone calls, folding my laundry, imagining doors opening, straining ears for footsteps, watching ice melt in their Diet Cokes while clocking Brody’s laps, wishing the clock would keep up with him, waiting for someone to come tell them what the doctor said. The glasses weren’t the only ones sweating.

Jennie summed it up like this:

Mom and I were sitting in the living room at my sister’s house, waiting desperately for someone to emerge from upstairs with news from the call. In a moment that seemed to stand still forever, Amanda quietly walked downstairs to where we were. My heart went to pieces as she looked at me and then just fell broken into my arms. It felt like all the oxygen left the room when I realized that my sister had breast cancer. Amanda and I fell into a sobbing heap, onto the loveseat. Mom began hyperventilating the second we heard the C word. I don’t know how she managed to make it across the room, but she fell onto the loveseat, becoming part of the heap with us. She and I sandwiched Amanda. We all felt like we were drowning, and all we could do was hold on to each other.

 

Chapter 7
Mother and Child Reunion

(Cue Paul Simon, because that is the soundtrack to this chapter)

 

The Redheads—In Their Own Words)

Before you slam the book shut…the following picture is not what you may think. My sweet children were not flipping me off nor did I choose this photo to flip you, dear reader, off. Rather, on the way to Racing for a Cure for their Mum, Amanda got that very finger slammed in Yukon’s door. We almost had to change route and race to the hospital. But once Amanda caught her breath and could wiggle and “flip” her finger, she decided it really said what she felt, both in that moment, and even more appropriately, about her Mum getting cancer. She asked me to take a picture, and the boys quickly stood proudly with their “little” sister: such sweet solidarity amongst siblings. This picture means more to me than you can imagine. And with that, I’d like to introduce my Redheads:

redheadsflipoffcancer

Amanda—17 years old

Legends and stories often have more to do with shaping a culture or person than the actuality behind those stories. I like this—I think it’s true. Please, don’t take the following as the word of God, but rather as the discombobulated memories of a girl. The facts here may have been entirely made up.

There is a tremor that runs through this memory—as an earthquake in my brainwaves. We all gathered in my brother Matt’s bedroom. My dad was on speakerphone—he was away somewhere. The doctor was on a different speaker. Gravity was unsure of what to do. The air felt unsteady and wobbled like a depressive drunk. I think it had grown thicker, too, possibly to catch me when I heard what it somehow already knew.

I don’t know what the doctor said. I don’t even remember the doctor’s gender. The only distinct thing that I remember is the sound of an implosion—and then the feeling of being submerged. It felt as though my spinal cord had been snapped and my brain set afloat in the stormy sea of cerebrospinal fluid. I think of the execution of Nicholas II, the last Russian tsar: a family lined up and murdered—shot. My brothers broke. My Mum instantly became mortal. My Dad, though . . . In my memory, there was an audible creaking—as though his spine was an ancient tree being straightened out. A groaning—as though he were a wooden ship being stressed from too much weight. A thump—as this new load, in sickness, dropped on him: the sound of a man becoming Atlas.

I walked away from the room, only able to stand because of the air’s thickness pillowing around me. Everything felt loosened and unconnected as I treaded downstairs to the couch. Be the adult, now—that’s what I was thinking.

I walked up to my Aunt Jennie. So far, so strong. But as I tried to force the word cancer out of my mouth, I found myself to be broken, too. Collapsed. Aunt Jennie’s arms gathered me up, and I remember resting against her breasts. I felt as though I were merely a page in a book and the epitome’s cover slammed heavily against me.

We wept.

mattandredballoon

Matt—15 years old

The whole day was a really big blur. I remember it seemed like it moved so fast, but at the same time it was also one of the slowest days ever. Mikeyy and I had been in my room playing Portal on our Xbox 360 for the previous couple of days, like going through the portals in the game took us through a portal out of our lives for just a bit. It seemed like the best thing to do to keep our minds off of everything going on. Then I just remember all of us in my room, huddled around the phone. Trying to get the phone conference going seemed like it took hours. The doctor’s voice had no real emotion, which just made it all the scarier. Finally, we got everyone on the phone: Dad conferenced in with us and the doctor. I don’t think any of us breathed the whole time the doctor was talking. Nothing she said made any sense to me. My mum was healthy. Nothing was wrong with her. Everything was fine. But then I was sitting there and the doctor was saying she had cancer. Then it hit me. I remember thinking about how ever since I was little, whenever Dad would leave on business trips, he would tell me that while he was gone, I was the man of the house. It eventually just became second nature so that he didn’t even have to tell me. I didn’t think I should cry because Dad was gone, which made me the man of the house. I didn’t think the man of the house would cry—I cried anyway though. I remember sitting in the corner by my bedroom door holding Amanda and Mikeyy. None of us really knew what to do. What can you do in that kind of a situation? I went and sat in my closet. Something about the dark enclosed space of my closet always makes me feel safe.

Mum picked the phone back up and she, Dad and the doctor stayed on for a while longer. I just kind of sat there in shock. Our whole lives had been shaken and everything was different. Everything seemed dark and rainy and just downright sucky then but I never even thought about the silver lining that would come.

mikeyyandme

Mikeyy—14 years old

I don’t cry a lot. In fact, I only cried once throughout the whole cancer earthquake that shook our world. I didn’t even cry once throughout the entire film, The Notebook. If you were to bottle up all the tears I shed year-round to give water to people in Nigeria, you would not even provide one person with 1/24th of the water needed in a day. If my tears were Noah’s flood, Noah would only be the size of seven molecules bonded together. In fact, eighty percent of the time water drops from my eyes, it’s my body rushing to my aid whenever I engage in my staring contest addiction, or me staring till I fake cry, so that Mum’s sweet little heart wants to give me whatever I want. That, or I’m just tired.

A time without tears can actually be a sad time. I’ve found throughout my life that when sad instances come along, tears are a little inadequate when it comes to expressing how I feel.

This instance was no different.

I did not cry when we got the phone call. I did not cry when we all dropped to the floor. I did not cry when the realization sunk in that I might not have my Mum around much longer. I did not cry.

Like I said, crying did not seem adequate in a situation like this. Instead, I nothing-ed. Nothing-ing seemed a little more appropriate. It at least made sense. Nothing I said or did would change anything. Nothing I felt would fix this. Nothing leaving my eyes would help. So I felt nothing—nothing but despair.

What’s “Ouch” Got To Do With It?

[This is part two in a series to commemorate my 6-year cancerversary, coming up on August 20, in which I am posting a free sneak peek of 6 chapters from my book, SHAKEN NOT STIRRED…A CHEMO COCKTAIL, as the numbers on the calendar remind me: Whoa. That hap’d. Six years ago. Today.

August 11, 2008 was the night I found the damn spot that turned out to be cancer. I posted that part of the story yesterday in part one. Click HERE to read that post with Chapter 2: “When The Stars Go Blue”.

Six years ago today, August 13, 2008, I had my first—and last—mammogram. By last, I don’t mean to brag about not having to have my boobs squashed between mammography plates anymore—#breastcancerperk #NOT. I just thought I’d point it out, because it might not be obvious that the reason for no further mammograms, is because, well…there ‘aint no more mamms to gram. Case in point: I still get a postcard in the mail every damn year reminding me it’s time for my yearly mammogram…FROM THE HOSPITAL WHERE I HAD MY MASTECTOMY. Cracks. Me. Up. Every. Damn. Time. I get one of these postcards in the mail. You’d think if anybody knew I don’t need a freaking mammogram anymore, it would be THE HOSPITAL THAT REMOVED MY BREASTS. So that’s why I was being all “Captain Obvious” about it. Anyway, the postcards don’t bother me; I can always use a good laugh. And, they do actually remind me…to remind my tribe to #getemsquashed. This chapter is about that  mammogram. It’s kinda my postcard to you, from the other side of breast cancer: “Been there. Done that. Had to buy a new t-shirt. Don’t wish you were here. So too those in the tribe who should have, but haven’t YET scheduled their mammograms, please go do that now, for you, and for me, k? And if you do schedule one after reading this, drop me an email letting me know, and I’ll send you one of my famous typo-fied “SKAKEN NOT STIRRED” bracelets for being so awesome in the self care dept.]

Chapter 3

Help Me Out God

I’d never had a mammogram before. Please . . . do not put it off until you’re forty-two years old and find a lump in your breast, like I did.

Dr. Allen couldn’t find the spot at first. One would think that would be a good sign. At least, we tried to take it as one. I’m a small-framed person and, to put it frankly, there is not a lot of room for a spot to hide. Maybe my simple prayer had been answered? Maybe I worked the spot out while I played tennis? Or maybe I had imagined it, after all.

That would’ve been awesome. That would’ve been the end of this story. And there is part of me that would’ve been OK with that. But that’s not how it happened. She eventually found the proverbial X.

Damn spot. It had been elusive due to rather awkward placement, right beneath the “milky way.” It figures, that even my cells would be undercover—all cloak and dagger, and spies like me.

I could tell that Dr. Allen didn’t seem to like what she’d found. She said she thought we should do a mammogram and an ultrasound to “cover second base.” That was not what I expected her to say, at all. Then she picked up the phone and scheduled the tests for the very next day.

I wasn’t scared yet. I had some adrenaline pumping, but not from jumping to conclusions. The things I’d heard about mammograms, particularly the squashing involved, made me cringe. I’d always experienced a sympathetic twinge of pain whenever I was with a group of women and the conversation uncomfortably shifted to mammogram stories, which usually followed everyone’s birth stories.

If you saw Casino Royale, you might remember a certain scene in which the most recent James Bond, played by Daniel Craig, took a few torturous knocks to the groin area. I had to close my eyes because I don’t like seeing people tortured. Or naked, really. And, especially, not being tortured while naked. The collective gasp from the men in the theater during that scene, told me it was one of those need-to-know scenes that I didn’t need to know. They obviously felt his pain.

Stories about mammograms and the squashing involved had a similar effect on me. And my overactive imagination did not help things when it came to considering my own impending mammogram. If mammograms were a Facebook page I would not have been a fan. If there were such a thing as a dislike button, I would have pressed it. Yet I needed to know what that damn spot was, so I didn’t have the mammogram invite removed from my events.

On Wednesday, my hubby and I went to what is now the Mary Jo Cropper Family Center for Breast Care at Bethesda North Hospital, in Cincinnati, to have the scheduled tests.

I couldn’t believe what a big deal my mammogram wasn’t. In retrospect, it was probably harder on my hubby than it was on me. I mean it. I found myself a tad distracted when the technician took out a Sharpie and drew an X right on the spot. Then she remarked that it was at six o’clock on my breast. I have to admit that I did appreciate the poetry of the whole X marking the spot. I had a lol moment, though, when she told me the placement in terms of a clock face. The spot was actually somewhere between 5:27 and 5:28, but I also round up. For some reason, this thought got a hold of my funny bone and wouldn’t let go, despite the gravity that kept trying to suck me in. And my funny bone is connected to my coping bone. This is where my head was while I placed my breasts between the mammography plates that squished but did not squash me.

Dave had no distractions and was not finding himself lost in the poetry of the Sharpie’s X. He was impatiently watching the clock and anxiously pacing off the waiting room like he was Quick Draw McGraw. Apparently, the nurses got worried about him and asked me to check on him as soon as they finished squishing my breasts between the mammography plates and right before they gelled them up for the ultrasound.

Dave was wound so tight that he had pitted out his shirt. Earlier we’d started a crossword puzzle together, but he couldn’t concentrate on it. We decided that it would’ve been a good thing to stock the waiting room with Scotch—right next to the coffee pot. Dave didn’t really need any caffeine. It was only three in the afternoon but we’d already established that it was already almost half-past five o’clock on my breast. Dave could’ve used a Scotch, maybe a double, and on the double.

The ultrasound was lengthy, due in part to the aforementioned savvy of the spot. But the technician also happened to find two more damn spots, while searching for the X that marked the first.

Also, the technician had a bit of a sneezing fit during the process. It was awkward sitting there with freezing cold gel on my hot boobs while the poor girl sneezed her head off. I said “bless you” a few times. The I threw in a “gesundheit.” After that I didn’t know what to say. So I asked her if she thought she might possibly be allergic to me.

After the tests I remember standing in a very small room while a couple of men in scrubs briefed Dave and me. They said the original spot was about a centimeter, the second was 0.7, and the third was 0.6. They said they all appeared to be solid masses—which didn’t sound good. But they tried to reassure us that it was not necessarily bad news. They recommended that we biopsy them all, but stressed I should not go home thinking I have cancer. There were “not bad” solid masses those damn spots could be. We were not there yet. And I honestly didn’t go there yet. Things were spinning so fast I really didn’t have time to look down. To me this was the hand of God walking me through the vertigo of it all, helping me out. I don’t have any other way of explaining it. Someone much wiser once wrote about “a peace that passes understanding,” which is about as close as I can come to describing it.

The next day Dr. Allen processed through the findings with Dave and me. She also wanted to do one more diagnostic test, prior to the suggested invasive procedures. It’s considered “alternative” and a bit controversial, but my experience with breast thermography was that it was a rather spot-on (pardon the pun) diagnostic weapon in the fight against breast cancer. Basically, it’s the use of infrared digital photography to capture the heat and blood flow in the breast. Apparently, cancer cells don’t cool off like normal cells do. Climate control is key, therefore, in breast thermography*.

Dr. Allen was meticulous in establishing the proper climate in the examination room, and in acclimating me to the climate of my discontent. It actually took most of Thursday to find just the right balance between the AC and the chill in my bones. Take one didn’t quite work out. Although they’d winterized the room all morning, my low body temperature called for arctic measures. It took four more hours to put a proper chill in the air.

First, I had to take off my shirt and stand there, holding my hands above my head (to keep my arms from trying to trap some heat in my pits) while the technician took pictures. This was uncomfortable on many levels. But it got worse.

Next, I had to stick my hands in ice water and keep them submerged for what seemed like forever. I was so painfully cold that I almost started crying. I thought about the Titanic. Which didn’t help. Because then I imagined my tears turning into icicles, dangling like stalactites from my cheek and chin. I decided I’d spell them eye-cicles if they did. That, actually, did help a teeny t-eye-ny bit.

Finally, Dr. Allen told me I could draw the ice cubes that used to be my hands out of the water. Then she told me to “put your hands up”—and busted is exactly how I felt, as I stepped back in front of the camera for mug shots of my breasts.

The digital images didn’t bode well. There was no evidence of cooling. My fingers were still blue; my breasts looked red on the screen. In other words, my boobs were hot. I’m really not trying to brag. Just stating the facts.

*

**http://www.huffingtonpost.com/christiane-northrup/the-best-breast-test-the-_b_752503.html

August Rush

#LiveEveryDamnDayLikeItsSharkWeek

It’s most likely a superpower; though, I know some might dismiss it as a mere a side-effect. Whatever. Semantics. All I know is that ever since I got cancer it’s like I have some kinda Spidey-like-sense, or something, to where I actually feel August coming. And once I stick my toe in it, things just amp up. And multiply, the further out I swim. You could call it an August rush, I suppose. The best way to describe what it feels like, is the theme song to Jaws: Na-na. Na-na. Na-na-na-na-na-na-na-na-na-na. Na-na… Which, on one hand, is oh so apropos, because of ShArKwEeK; and in the other hand is my poetic license because of my own private #pinknado—aka my cancerversary.

Sunday night we celebrated both at the Evanshire. We tuned the “boob tube” to Shark Week…we ate swedish fish, goldfish crackers and other light-“bites”, drank “cancer is a Bitch wine” and “not-a-chemo-cocktails”, and were merry… we caught a sneak preview of the soon to be released “Cancer is a Bitch” music video (by my Redheads’s band, the Kicked-in Fence)… we impaled a shark piñata with a sword aka Excalibur, that my son grabbed from the umbrella stand… we read the #LiveSincerely pledge… and then we launched helium balloons with bucket list items on them into the night sky. It. Was. Magic. One of those nights to remember… to live every damn day like it’s shark week.

The very next damn day, the funniest man alive killed himself. The genie is free. But we’re all left standing on top of our desks, crying, “O captain my captain.” :( O for a na-na na-na… instead of one. final. nanu nanu. RIP, Robin. I hope you fly. And if you see a bunch of balloons up there, I hope it makes you happy to see what dreams may come, from a pretty damn good seat for the show. I was so super freaking tempted to plant myself on the couch tonight and do a Robin Williams marathon…

But six years ago tonight, in these same wee hours that I sit here plucking away at this piece, I found a damn spot in my left breast that turned out to be cancer. And yet, here am I, six years later—alive. It’s a lot to wrap the old bean around. Especially when I’ve lost so. many. too. many. people I love to this bitch of a disease. Yes, I feel like I get a little more lost, every time somebody I love finishes their battle with cancer. And yet, here. I am. Still. Alive, and kicking (cancer’s ass), healthy, fit, happy, lucky. It doesn’t seem fair, if I’m being honest. And why wouldn’t I speak that truth? #mytruth: This is something that tears me up inside every damn day that one of my friends gets diagnosed, or has a recurrence. It’s something I spend myself into the ground over, trying (as if?) I could make it worth it that I keep getting this precious gift that so many, too many of my friends, don’t. It’s something that makes me feel the way time flies uber acutely, like there’s not a second to waste if I want to leave some kind of a beauty mark that I was here. It’s something I talk to my shrink about.

So I’m a writer. This is who I am. It’s what I do. So of course I wrote a book about my cancer journey. It’s called SHAKEN NOT STIRRED…A CHEMO COCKTAIL. It’s a comedy about my tragedy. It’s not that I think cancer is funny or anything. Cancer sucks. But I believe laughter is good medicine. So did Patch Adams. If my book were a “literal” chemo cocktail, it would be one part hope, a dash of bitter, a splash of sweet, with a twist of humor, and served on the rocks. And, of course, shaken, not stirred.

To celebrate my SIX YEAR CaNcErVeRsArY, this August month, I thought I’d serve up half a dozen chapters in this space, in real time, as we keep turning pages on my #pinknado of a calendar. It seemed like the least I could do, to offer up some of the gratitude splashing out of my very full cup. I don’t want to waste a drop.

Here’s what I wrote about this night, six years ago, when I found the damn spot…

Chapter 2


When the Stars Go Blue
(Cue: Tim McGraw)

On August 11, 2008 there were meteor showers over Cincinnati. My world was rocked that night, but it had nothing to do with the meteors that my teenage son Mikeyy and I watched in the wee hours of that sleepless in Cincinnati kind of night.

Previous to Perseus’ fireworks display, somewhere in between the lines of August 11 and 12, I’d awakened particularly parched from the end-of-season cocktail party I’d thrown that evening at the Evanshire, aka my home sweet home.

Being somewhat of a newbie tennis freak, I’d played on three tennis teams that summer. My neighborhood team had just won the division championship. My United States Tennis Association (USTA) team had just played in the district championship tournament. We actually won the districts, but.

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And the big but (yeah, they say everybody’s got one) was that the win pushed one of our player’s ratings into a higher bracket, which.

And the “rhymes-with-a-witch” was that “the win?” officially disqualified all her matches and our team from the victory, not to mention a road trip to regionals. The trophy didn’t have a chance to slip through our fingers; we never even got to touch it before the ruling came raining down on our parade.

For the cocktail party, I’d grabbed several bottles of a certain Grenache that had caught my eye from across the wine store where I was searching for just the right red and/or white to go with our blues. It had a hot pink label with elegant cursive lettering that read Bitch.

Cancer is a bitch wine

My tennis girlfriends cracked up when I presented the wine. Then we all sighed, and said, “Yeah, it sure was.” We uncorked the wine. It was the best of times and we were making the best of the worst of times. We ate and drank and made merry. I went to bed thirsty.

I knew I would wake up in the middle of the night dying-of-thirst thirsty.

What I didn’t know was that dying of thirst would end up saving my life.

It was five o’clock somewhere—for me it was somewhere in the middle of the night when I woke up from a dream in which I was practically dying of thirst and trying desperately, though unsuccessfully, to quench it.

“Need . . . H . . . 2 . . . Ohhhh,” I sputtered out in a dry whisper like I was some kind of a tumbleweed, searching for an oasis.

“So. [click] Very. [click] Thirsty.”

I couldn’t even peel my tongue off the roof of my mouth.

I’d dealt with similar middle-of-the-night dehydration before, so I had the drill down, practically in my sleep. I tumbled out of bed, crawled across the bedroom floor, slithered down the stairs more like a Slinky than a snake, and somehow found myself standing in front of the kitchen sink. I guzzled a glass of water, diluting the dehydration and dousing the dream.

Then I poured another, and headed to the study to sip on the second one while checking Facebook. And I played a little Scramble, to try and unscramble the fog in my brain.

That’s when I bumped up against my desk—Ouch. I felt—and heard—an unexpected thud.

Something had gone bump in the night— and the bump was on me: my left breast, to be more specific.

My jaw fell to the floor and my eyebrows formed a question mark as I held my breath, brought my hand to my breast, and felt the lump.

I cannot explain the shock and awe I felt. It was like a meteor to my chest, literally. I remember the lump felt like a shooter marble right beneath the “milky way.” I was pretty sure it wasn’t there the day before. My hubby, Dave didn’t mention anything about marbles later that night. I’m sorry if that’s TMI, but I don’t see how we could’ve missed a meteor like that.

I don’t know how long I sat there trying to imagine what in the world the marble could be. I found myself checking and rechecking to see if it was really there. Then I kept checking and rechecking to see if it was still there. Part of me thought I was imagining things. But, no, it was still there. Part of me started imagining things. I felt the meteor again, and then stared out the window.

My fourteen-year-old son Mikeyy was lying out on the driveway, gazing up at the meteor showers in the sky. I let go of my own gravity and let myself get pulled into his world for a little while— snuggling up next to him and watching the sky fall, like it was a movie.

That time with Mikeyy is etched in my soul as a perfect snapshot of—not my life passing before my eyes, in the dying sense—but more like a haiku, capturing what it was all about.

When the meteor show was over, I had a hard time keeping my thoughts from spiraling out of control. A sensible part of me, that I had to dig way down deep for, took all the other parts of me, and put them to bed.

Not wanting to wake Dave, I lay there, deciding to wait out the night. I waited for him to wake. I waited to see if it would just go away. I waited. And prayed.

Since my thoughts like to play connect the dots, this would be where my inner Lady Macbeth spoke up, as “Out, damn’d spot” were the words that came out. This seemed like a reasonable prayer, so I went with it.

I spent a lot of time trying to figure out what to say to Dave when he awoke. The truth is, I generally obsess over just about anything I even think of, processing it at from every angle before it gets “on deck,” on the tip of my tongue. Just to make sure I say what I mean to say, and that I articulate it the way I mean it. Extroverting is not my strong suit. I can do it, but I don’t think I do it very well. And it wears me out. I had nothing by the time he woke up. I was worn out, wound up, and ended up just winging it.

Some words tumbled out into the air and then seemed to settle in a cloud over Dave. He groaned one of those “groanings which cannot be uttered,”9 (like he already knew, too) and fearfully, mechanically, reached over toward the spot.

Dave said that waking up to that morning was like waking up on the worst possible side of the bed ever.

I was still pretty groggy when Joules asked me about a lump she had found on her breast. She’s pretty random and often catches me off guard, but in twenty years of marriage, she had never asked anything quite like this. As soon as I felt the obvious lump, the fog instantly cleared and I was wide awake. My heart and mind started racing, but I tried not to let her see my fear. Outside I was saying, “Hmm, that’s strange,” but inside I was frantically praying, “Please, God, no! Please, God, no! Please, God, no!” Ever since we had a friend diagnosed with breast cancer, I held a secret fear that it might strike Joules one day. This fear only intensified when our friend lost her seven-year battle. Before that, cancer was something other people got. Old people. People with unhealthy lifestyles. People I didn’t know. But our friend was young, healthy (fit, even), a wife and mom, a good and godly woman. And she was one of Joules’s closest friends. Suddenly breast cancer was very real to me, and very scary.

I won’t ever forget that groan. Dave’s middle name, Wayne, means wagon, and I could just feel him bearing the weight that was to come.

He felt the spot; I had not imagined it.

He got out of bed and made a pot of coffee. Dave makes coffee for me every morning. Even brings a cup up to our bedroom and sets it on my nightstand to help me wake up, smell the coffee, rise and shine, seize the day. Yes, I am spoiled. I admit it.

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Then he headed to the study with his computer, and began researching what “not bad” things it could be. At first we were hoping it might be a cyst, or hormones. Or even a boil—at which point, I channeled my inner Job. Then he began adding big words that started with fibro– and pap– and ended in –oma, and my brain went all foggy again.

I poured another cup of coffee and called my sister, Jennie, who lives in Charleston, to tell her about the damn spot. She’s my baby sister, but also my best friend. She’s also a little ADHD. I happen to love her rabbit trails, so I figured I could thumb a ride on her distraction.

Jennie later described the rabbit hole she fell in when I told her about the lump.

The day Joules called me and told me about the damn spot she found, I asked her if she thought it might just be a pimple or something weird like that. I tried to be reassuring for her and myself. The thing is, Joules has always been the strong one, and almost like a mother to me, all my life. And to me, nothing bad could or would ever happen to her. But when we hung up the phone, the knot that seemed to have tied in my throat came undone, and my tears broke free. My glass is not always as full as my sister’s, and it sort of felt like it had just tipped over.

Dave made an appointment with my gynecologist for three o’clock that afternoon. I had chosen her because I was not really into doctors at the time. She was a naturopath, but also an MD. Basically, she was into alternative/non-traditional—with leanings toward Eastern—medicine. I liked that she was not a traditional medical evangelist, but had that training as well, in the palette of her doctor’s bag. I did not worry that she would jump to any radical medical conclusions because that was not her holistic style. I felt we were sort of on the same page and that everything could be OK, because she was the most likely doctor to find alternative explanations for the spot, and alternative ways of spot removal.

Meanwhile, Dave told me I should go ahead and go to a tennis clinic I’d already signed up and paid for, to try to keep my mind off that damn spot until three.

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—So that’s the end of the chapter, but obvs… there’s more chapters, and way more to the story besides just me standing there waiting for the tennis ball to cross the net so I can CRUSH it! So feel free to stay tuned to see what haps next. Or if you are impatient as hell like me, SHAKEN NOT STIRRED…A CHEMO COCKTAIL is avail on Amazon and Kindle. Click HERE. The Kindle version is avail for $2.99 with the purchase of the paperback, which is $9.99. On August 20, in commemoration of the day I heard the C-word, the Kindle version will be FREE.

P.S. Here’s the iTunes Link to the “Cancer is a Bitch” Song by the Kicked-in Fence aka my Redheads<3 To download the Cancer is a Bitch song, click HERE. It’s only 99 cents, but you should see what starving artist college kids can eat for 99 cents these days!

I’ll post the music video as soon as we’ve put the final editing touches on it.

What Are You Manifesting?

I couldn’t help but smile, which helped me relax a little, when she started handing out post-it notes. I love post-it notes. I’m forever putting those sticky reminders all over the Evanshire to try and help me remember shit. Lists. Prayer requests. Blog fodder. Vlog ideas. Quotes. Addresses. Dr. appts. Songs I want to download. People I need to thank. Writing ideas….

Post-its

But I’d never even thought of using them as an icebreaker before. BAM! Already got my first takeaway from Jen Pastiloff’s Manifestation Retreat that I was on, and we had barely taken our seats, cross-legged, on the floor, side by side, forming a large circle. Like a tribe. At which point Jen handed out smiley face colored post-it notes, each pregnant with possibility, all of them glowing like a blank pages do. Expectant. Waiting to be written.

“What are you manifesting?”

The way Jen threw down those 4 little words was a lot like Bobby Flay throwing down one of his challenges, with some Heisenberg mixed in: Wanna cook? Just. to. shake. things. up. But shaken, not stirred.

I’d driven for 2 days to come to Jen’s yoga/writing retreat in the Berkshires, to kickstart the writing process for a couple projects I was was ready to dive into. I was manifesting a prequel, of sorts, to my cancer memoir, SHAKEN NOT STIRRED…A CHEMO COCKTAILAnd also a sequel, of sorts.

Jen told us to write down what we were manifesting that weekend on the Post-it notes, and then to get up and go stick them in the middle of the circle of the tribe of beautiful souls we hadn’t met yet, but would walk beside, that weekend during Jen’s Manifestation Workshop.

We’d all come to Manifest a certain goal or dream aka to make that shit happen, the way Jen breaks down the word Manifest so there were 40 Post-it notes in the middle of our pow WOW. We’d made it rain Post-it notes. And they were written.

Mine said, HOMESCHOOL HAPPY HOUR…IT’S 5 O’CLOCK SOMEWHERE, KIDS! And, BOTTOMS UP…”GETTING OVER” CANCER. 

I’d post a picture of it, but I don’t have it. After all the Post-its were out there, sitting there like yellow badges of courage, Jen told us each to get up and grab a Post-it that wasn’t our own. To keep. To remember. To hold what they are manifesting UP. I purposely chose the last yellow badge of courage left on the floor. I do fortune cookies this way too. I could explain, but then we’d end up falling down some rabbit hole. And also I’d probably get hungry thinking about that cookie too much. And squirrel! Like that, this post would be history. So thankfully this post is about Post-its, which are sticky reminders. So hopefully I’ll remember to stay on task. Like I’m remembering the yellow badge of courage I brought home with me, and the beautiful soul behind the badge. It is hanging on a wall in my office, where I keep Post-its of prayer requests and peeps I pray for.

And one of those beautiful souls has mine. But I believe they are all cheering me on, as I am them, as we all are each other. Like a tribe.

“If you knew who walked beside you at all times on this path which you have chosen, you would never experience fear or doubt.”

In honor of that, and in light of that which I was/am manifesting, I thought I’d throw down a possible prologue, of sorts, for the project on the front burner, my homeschool/parenting memoir: HOMESCHOOL HAPPY HOUR… IT’S 5 O’CLOCK SOMEWHERE, KIDS!

Prologue

Skyfall

The first time I saw my first book, SHAKEN NOT STIRRED… A CHEMO COCKTAIL had finally hatched on Amazon after 18 months of blogging my way through breast cancer, 8 months of writing, and 11 months of editing, it was as if the heavens opened up and I felt so way up high that I thought I really could see somewhere over that rainbow where dreams really do come true… and then I read the fine print. Or rather, the fine misprint in the form of a parenthetical aside to the title: (Volume I). That’s when the sky fell. I was definitely not in the mood for a volume II, to my breast cancer memoir, if you know what I mean.

I got the kink worked out with Amazon, but I guess it’s a fairly reasonable thing that people, whether or not they saw the Amazon typo, started asking me, “When does the sequel come out?” Or, “Is this one going to be STIRRED NOT SHAKEN? Um, no. That wouldn’t be very James Bond of me, now, would it? The truth is, the mere thought of another volume, another chemo cocktail, is where I channel my inner Chicken Little and can picture the sky fall.

Which I can totally imagine being the theme song (and a Bond song to boot) if I were to write that sequel. Which, this is not, thank God, and God willing, may I never have the unfortunate occasion to have that sequel to write.

The last time I saw the sky fall and I found myself smack dab in the middle of my hopefully one and only breast cancer memoir, it fell on top of me and nearly took me out. Literally. It almost killed me.

Like I wrote in the prologue of that hopefully one and only breast cancer memoir, I’ve always been a writer and I have always dreamed of writing books ever since I cracked the code and learned to read. I just never ever would’ve could’ve imagined the story I’d have to, quite literally, “get off my chest” and that would become the subject, not to mention, the antagonist, of my first book. Which, in an ironic twist of fate thanks to the genre gods, landed it in the disease section of Barnes & Noble. This is not the end either, though. Let the books fall where they may. It’s still a dream come true. Not to mention…the last page was not the end of my story. Spoiler alert: the hero of the story is somewhere once upon a time in a not-a-chemo-cocktail kind of a sequel, hopefully a series.

But this is not the end…of that story. Even I’m still wondering what happens next. I mean, c’mon. It’s a memoir not a novel. I don’t write the plot. I just try and go with the flow, enjoying the ride, sharing moments and making memories with the people I love, collecting new friends along the way, keeping a decent travel journal, taking lots of pictures, and sending plenty of postcards.

This is what came before that story. B.C. or before cancer, the prequel to SHAKEN NOT STIRRED…A CHEMO COCKTAIL, which chronicles my “cancer era” or C.E., or my life A.D., after diagnosis, if you will.

Before I became radioactive with a chance of superpowers, using them to fight cancer and also to write, I had some big ass glasses like Clark Kent or Fearless Fly and was holding down a pretty cozy job with ridiculous crazy hours as an accidental homeschool mom.

Back then I taught writing more than I wrote; although I wrote whenever I could, read about writing in all the great books on writing not to mention the classics I assigned my Redheads to read, thought about writing while grading papers, and dreamt about writing one day when we all graduated and I retired.

This is the book I thought I would write first. Kinda my “Confessions of a Homeschool Mom.” After they were all successfully situated in college and I was pretty sure they had all survived homeschool safe and relatively sound.

I was so enchanted with that story and the development of my three main characters that the plot twist when the sky fell and I almost didn’t survive homeshooling not to mention, my life, caught this supporting character by surprise. There’d been no forshadowing. But the sky fell anyway, and when it did there was nothing we could do but let it. So we let it. But on our knees. And together. Before cancer was the unfortunate subject of my book, it was the most unfortunate subject in our homeschool. But it wasn’t the only subject in our homeschool; although in a sense, it tested everything that had gone before the sky fell. Before cancer. So BC is where the confessions of this homeschool mom begins. And might as well start at the very beginning, before BC, to the A. Which comes first in the alphabet. Which is one of the very first things kids learn in school.

Chapter 1 (Cue Jackson 5)

ABC 

Easy as 1-2-3. This was not the first thought that crossed my mind the first time my husband, Dave, brought up the idea of homeschooling our children to me when I was pregnant with our first child. First of all, I hadn’t actually even heard of homeschooling back in 1990 when I was knee deep in What To Expect When You’re Expecting despite the fact that I couldn’t even see my knees for the belly. My first thought was more like, “What the F is homeschool? Then Do-Re-Who-Me?” Then I pretty much summed things up when I hyperventilated, which was a perfect time to practice my Lamaze breathing techniques he he he hahahahahahahaha.

It seems appropriate to end on that note since I only intended to give a little teaser to chapter one.

So this is me, taking the next step and throwing down a shitty first draft of a possible beginning to my next book. BAM! That’s what I’m manifesting. That’s the shit I’m trying to make happen. That’s me, trying to do what I was created to do, what love compels me do. Like Jen says,

“At the end of your life, when you say one final ‘What have I done?’ let your answer be, I have done love.”

I have done love

What about you? What are you manifesting? Please share in the comments, or send me an email, or If you want to write it on a Post-it note and snail mail it to me, I will stick it on my wall.