Tagged Maya the Magnificent

October 5, 2017

Sometimes The Stars Align… and Sometimes The Sky Falls

[I am reposting this #tbt in honor and sweet memory of my little warrior sister, Maya the Magnificent aka my mini me. I wrote it 3 years ago. A time part of me wishes I had the superpower to throw back this Thursday to. My sweet Maya finished her loooooooooonnnnnnnnnnnngggggg battle against #AML #fuckcancer. 9/12/03 – 10/2/17. She was only 14. #butthoughshebebutlittleshewasfierce She was 6 when she got diagnosed with AML. 3 battles. 3 bone marrow transplants. Think about it. Half. Her. Short. But. Sweet. Life. She spent her last year at St. Jude fighting for her life. Every damn day. 365. She had her 3rd bone marrow transplant the day after her 13th birthday. She spent her entire year of being 13 in the hospital fighting for her life. She turned 14 in the hospital. She finished her fight a few days after she turned 14. The last video I got from her was of her opening up the birthday presents I sent her. A nurse walked in and interrupted her and kinda rained on that parade and sweet Maya’s eyes rained a little and the gift parade ended. I don’t even know if she got to open them all and it breaks my heart but that’s not even the point. The point is, cancer is a motherfucker. And before anybody says Maya lost her battle, please don’t. Maya didn’t lose her battle; and cancer sure as hell didn’t win. Please don’t give cancer that kinda #fakenews credit. The cancer is no more. Maya kicked its ass, took down its number like nobody’s biz, took. cancer. down. And Maya is forever. She will live on and on to infinity and beyond in the hearts and memories and Maya shaped holes she left down here This is the truth as best as I know it: Maya fought the good fight; she finished her race; she kept the faith #likeaboss. Like she told me on one of the old videos we used to make together, her superpower weapon was her smile. I am here to testify to that, her truth. Her. Smile. Slayed. It slayed me. And I know it slayed cancer. I seriously don’t know many adults that have gone through suffering like my girl Maya with such grace. And I will never be the same from the pleasure of knowing her and being loved by her. I always say she made me want to be the best version I could be of myself. And my hard truth was, I don’t think we were done. That time the sky fell.]

This is how Maya and I met.

Maya’s mama posted this pic on my Facebook wall, after they saw a video I shot at a Stand Up To Cancer event we had for my 2-year cancerversary in August 2010. The video was my daughter’s entry in SU2C’s “Up To You” music video contest. The challenge was to put your own spin on the song. The top 3 would be featured on the SU2C show that September.

This was my sweet Amanda’s spin on the song. I shot the film (that’s why I’m not in it) and my sweet Mikeyy edited the video. The band behind her is the rest of The Kicked-in Fence: her brothers Matt (guitar) and Mikeyy (djembe) and their friend Dustin Boudinet (guitar). All the lovely peeps are the kinds of friends I got by with a little help from. A few of them I miss because they have since finished their own cancer battles. Which only makes this video more precious because it captures a moment when we all stood up to cancer together. It. was. magical.

Amanda got 4th place in the contest. But the point is, this is the ripple Maya caught a wave, or rather a high-5, into our lives on. After Maya saw the video, she asked her mom to take that epic pic of her giving me a SU2C high-5 and standing up to cancer with me. Is their anything more precious?

The reason I bring this all up is because everybody’s always asking me about how Maya and I met.

So once upon a time 9 years ago, I happened to flip on the TV and catch the first Stand Up To Cancer show, while recovering from my double mastectomy and my first chemo cocktail hangover. I know this sounds super self-centered, but I felt like it was made for me TV. Like maybe somehow the stars aligned and the big dipper was pouring out the proverbial spoonful of sugar over the Evanshire. (Of course, I took it shaken not stirred, in case you’re wondering;)

[…And somehow the dots in that constellation connected Maya and me and my life will never be the same from her light shining bright like a diamond like it did/still does/always will. Fly high, Magnificent Maya. #twinkletwinkle little star…]

October 1, 2014

Birthday Presence

I have a little tradition I started when I was thirty-something that, when I can remember not to forget, I write a sonnet for my birthday. A poetry selfie, if you will. So my birthday was Saturday and I turned lucky seven to the (super)Power of Two! And here’s the sonnet. It’s called Sonnet #49 because that’s the super secret code name I came up with when I did the math.

Sonnet #49

Yes, of course I’d like to know if you will

Still love me when I’m Sixty-four and my

Hair is blue. But. It knows that song well

Already, and you have not said goodbye—

#thingsthatmakemesaywhew . . . because

Who knows what color it will be next week?

It’s only hair. And ‘tis what it is, ‘twas

What it was, ‘twill be well, not mild, yet meek.

Not like a mouse. I mean, I like cheese, but—

Now is not the time for shrinking back. Not

At my age. Alice sure knew what was what

When she ate that cake: Took a bite and shot

For the moon. ‘Twas her one shot which is all

We all get. So let us eat the cake y’all!

Besides the birthday sonnet, I also uploaded “The Birthday VLOG” to my Year of Living Sincerely series on YouTube. Kinda a talkie selfie, if you think about it a little. Anyway, so here’s the video. And since it’s a talkie, I’ll let it introduce itselfie.

September 5, 2014

Sometimes The Stars Align

This is how Maya and I met.

My little warrior sister Maya the Magnificent

The reason I bring this all up, besides the fact everybody’s always asking me about how Maya and I met, is because the Stand Up To Cancer show is on TV tonight.

6 years ago tonight, I happened to flip on the TV and catch the first Stand Up To Cancer show, while recovering from my double mastectomy and my first chemo cocktail hangover. I know this sounds super self-centered, but I felt like it was made for me TV. Like maybe somehow the stars aligned and the big dipper was pouring out the proverbial spoonful of sugar over the Evanshire. (Of course, I took it shaken not stirred, in case you’re wondering;)

Anyway, so Maya’s got a birthday coming up next week and I thought it would be super fun for her if a bunch of peeps wanted to send her SU2C high-fives and/or postcards from wherever you are from. Post the pics in the comments or email them to me and I will make a video of them all for Maya. Send postcards to: Joules Evans, PO box 882, West Chester, OH 45071 [Attn: Maya].